OBJECTIVE: The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD). METHODS: The parents of 287 male patients with DMD aged 5-18 years completed the PARS-III and Revised Rutter Scale. RESULTS: The alpha coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported. CONCLUSIONS: The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes.
OBJECTIVE: The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD). METHODS: The parents of 287 male patients with DMD aged 5-18 years completed the PARS-III and Revised Rutter Scale. RESULTS: The alpha coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported. CONCLUSIONS: The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes.
Authors: David J Birnkrant; Katharine Bushby; Carla M Bann; Susan D Apkon; Angela Blackwell; Mary K Colvin; Linda Cripe; Adrienne R Herron; Annie Kennedy; Kathi Kinnett; James Naprawa; Garey Noritz; James Poysky; Natalie Street; Christina J Trout; David R Weber; Leanne M Ward Journal: Lancet Neurol Date: 2018-02-02 Impact factor: 44.182
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Authors: Reina J A de Kinderen; Danielle A J E Lambrechts; Debby Postulart; Alfons G H Kessels; Jos G M Hendriksen; Albert P Aldenkamp; Silvia M A A Evers; Marian H J M Majoie Journal: BMC Neurol Date: 2011-01-25 Impact factor: 2.474
Authors: Holly L Peay; Barbara T Do; Neil Khosla; Pangaja Paramsothy; Stephen W Erickson; Molly M Lamb; Nedra Whitehead; Deborah J Fox; Shree Pandya; Kathi Kinnett; Jodi Wolff; James F Howard Journal: J Neuromuscul Dis Date: 2022