Literature DB >> 18639409

Computer-mediated infertility support groups: an exploratory study of online experiences.

Sumaira H Malik1, Neil S Coulson.   

Abstract

OBJECTIVE: Over recent years the Internet has become an increasingly popular source of support and information for infertility, with a growing number of online support groups now available to individuals affected by fertility problems. The aims of the present study were therefore to explore the online experiences of individuals accessing infertility support groups via the Internet.
METHODS: Ninety-five participants who were recruited from several online infertility support groups completed an online questionnaire containing a series of open-ended questions. Responses to the open-ended questions were analysed using inductive thematic analysis.
RESULTS: The thematic analysis revealed five recurrent themes, which were labelled: 'unique features of online social support', 'improved relationship with partner', 'reduced sense of isolation', 'information and empowerment', and 'negative aspects of online communities.'
CONCLUSIONS: This study suggests that the majority of participants considered there to be a range of important benefits from accessing online communities. However the results also demonstrate that there are a number of disadvantages to online infertility support groups that may have an impact on the experiences of infertile individuals. PRACTICE IMPLICATIONS: Online support groups may provide a valuable forum through which health care professionals can better understand and support the psychosocial needs of individuals experiencing infertility.

Entities:  

Mesh:

Year:  2008        PMID: 18639409     DOI: 10.1016/j.pec.2008.05.024

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  25 in total

1.  Don't Give Up! A Cyber-ethnography and Discourse Analysis of an Online Infertility Patient Forum.

Authors:  Mihan Lee
Journal:  Cult Med Psychiatry       Date:  2017-09

2.  Support Desired by Women Following Termination of Pregnancy for a Fetal Anomaly.

Authors:  Aarti Ramdaney; Syed S Hashmi; Manju Monga; Rebecca Carter; Jennifer Czerwinski
Journal:  J Genet Couns       Date:  2015-04-02       Impact factor: 2.537

3.  Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1: a Pilot Study.

Authors:  S Martin; M C Roderick; R Lockridge; M A Toledo-Tamula; A Baldwin; P Knight; P Wolters
Journal:  J Genet Couns       Date:  2016-11-07       Impact factor: 2.537

4.  Communicating health decisions: an analysis of messages posted to online prostate cancer forums.

Authors:  Elizabeth Sillence; Phoenix K H Mo
Journal:  Health Expect       Date:  2012-02-02       Impact factor: 3.377

5.  Losses and Gains of Psychosocial Resources: Effects on Stress Among Women Undergoing Infertility Treatments and Participating in Social Network Systems.

Authors:  Leigh Chazan; Talma Kushnir
Journal:  Psychiatr Q       Date:  2019-12

6.  An Internet support group for parents of children with neurofibromatosis type 1: a qualitative analysis.

Authors:  Staci Martin; Kari L Struemph; Alyssa Poblete; Mary Anne Toledo-Tamula; Robin Lockridge; Marie Claire Roderick; Pamela Wolters
Journal:  J Community Genet       Date:  2018-03-02

7.  Social support in an Internet weight loss community.

Authors:  Kevin O Hwang; Allison J Ottenbacher; Angela P Green; M Roseann Cannon-Diehl; Oneka Richardson; Elmer V Bernstam; Eric J Thomas
Journal:  Int J Med Inform       Date:  2009-11-27       Impact factor: 4.046

8.  VisOHC: Designing Visual Analytics for Online Health Communities.

Authors:  Bum Chul Kwon; Sung-Hee Kim; Sukwon Lee; Jaegul Choo; Jina Huh; Ji Soo Yi
Journal:  IEEE Trans Vis Comput Graph       Date:  2016-01       Impact factor: 4.579

9.  'I felt less alone knowing I could contribute to the forum': psychological distress and use of an online infertility peer support forum.

Authors:  Siobhan Bernadette Laura O'Connell; Eden Noah Gelgoot; Paul Henry Grunberg; Joy Schinazi; Deborah Da Costa; Cindy-Lee Dennis; Zeev Rosberger; Phyllis Zelkowitz
Journal:  Health Psychol Behav Med       Date:  2021-02-11

10.  Barriers and facilitators for the implementation of an online clinical health community in addition to usual fertility care: a cross-sectional study.

Authors:  Johanna W M Aarts; Marjan J Faber; Anne G den Boogert; Ben J Cohlen; Paul J Q van der Linden; Jan A M Kremer; Willianne L D M Nelen
Journal:  J Med Internet Res       Date:  2013-08-30       Impact factor: 5.428

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