Literature DB >> 18607702

"I wouldn't classify myself as a patient": the importance of a "well-being" environment for individuals receiving counseling about familial cancer risk.

Ceri Phelps1, Debra Horrigan, Liwsi Kim Protheroe, Janina Hopkin, Wendy Jones, Alexandra Murray.   

Abstract

Many individuals receiving genetic counseling are healthy with no need for clinical cancer services. We have recently relocated our cancer genetic clinic to a small house on the outskirts of a hospital site which incorporates many elements proven to be important in creating a "well-being" environment. This study explored participants' perceptions of such an environment. Eleven semi-structured telephone interviews were conducted with women who had attended the new cancer genetic clinic. All were at high risk of familial cancer, five were gene carriers and three had a personal diagnosis of cancer. The new clinic was perceived to be less medical and more relaxing than other clinics, encouraged other family members to attend in support of the attendee and did not appear to impede information comprehension. The importance of not being made to feel like an ill patient was apparent. A desire for a quiet area allowing time for reflection whilst waiting for, and following, counseling was identified. A poorly designed counseling area could reduce the quality of the interaction between patient and counselor. Consideration of specific environmental design features may promote individuals' well-being and make those attending genetic counseling feel less like "patients." Larger studies should seek to explore further the potential associations between factors such as environmental design, psychological well-being and comprehension of risk information.

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Year:  2008        PMID: 18607702     DOI: 10.1007/s10897-008-9158-z

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  26 in total

Review 1.  The future of genetic counselling: an international perspective.

Authors:  B Bowles Biesecker; T M Marteau
Journal:  Nat Genet       Date:  1999-06       Impact factor: 38.330

2.  Therapy by design: evaluating the UK hospital building program.

Authors:  Wil Gesler; Morag Bell; Sarah Curtis; Phil Hubbard; Susan Francis
Journal:  Health Place       Date:  2004-06       Impact factor: 4.078

3.  How design impacts wellness.

Authors:  R S Ulrich
Journal:  Healthc Forum J       Date:  1992 Sep-Oct

4.  A randomized controlled trial of a brief self-help coping intervention designed to reduce distress when awaiting genetic risk information.

Authors:  Paul Bennett; Ceri Phelps; Kate Brain; Kerenza Hood; Jonathon Gray
Journal:  J Psychosom Res       Date:  2007-07       Impact factor: 3.006

5.  The lived experience of listening to music while recovering from surgery.

Authors:  R G McCaffrey; M Good
Journal:  J Holist Nurs       Date:  2000-12

6.  Distraction therapy with nature sights and sounds reduces pain during flexible bronchoscopy: a complementary approach to routine analgesia.

Authors:  Gregory B Diette; Noah Lechtzin; Edward Haponik; Aline Devrotes; Haya R Rubin
Journal:  Chest       Date:  2003-03       Impact factor: 9.410

7.  Comprehensive care plus creative architecture.

Authors:  James G Easter
Journal:  J Oncol Manag       Date:  2005

8.  Randomized trial of a specialist genetic assessment service for familial breast cancer.

Authors:  K Brain; J Gray; P Norman; E France; C Anglim; G Barton; E Parsons; A Clarke; H Sweetland; M Tischkowitz; J Myring; K Stansfield; D Webster; K Gower-Thomas; R Daoud; C Gateley; I Monypenny; H Singhal; L Branston; J Sampson; E Roberts; R Newcombe; D Cohen; C Rogers; R Mansel; P Harper
Journal:  J Natl Cancer Inst       Date:  2000-08-16       Impact factor: 13.506

9.  Patient satisfaction with two different models of cancer genetic services in south-east Scotland.

Authors:  S Holloway; M Porteous; R Cetnarskyj; E Anderson; R Rush; A Fry; D Gorman; M Steel; H Campbell
Journal:  Br J Cancer       Date:  2004-02-09       Impact factor: 7.640

10.  A randomised controlled trial of breast cancer genetics services in South East Scotland: psychological impact.

Authors:  A Fry; A Cull; S Appleton; R Rush; S Holloway; D Gorman; R Cetnarskyj; R Thomas; J Campbell; E Anderson; M Steel; M Porteous; H Campbell
Journal:  Br J Cancer       Date:  2003-08-18       Impact factor: 7.640

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  2 in total

1.  Effects of a genetic counseling model on mothers of children with down syndrome: a Brazilian pilot study.

Authors:  Marcos Ricardo Datti Micheletto; Nelson Iguimar Valerio; Agnes Cristina Fett-Conte
Journal:  J Genet Couns       Date:  2013-06-23       Impact factor: 2.537

2.  Embodiment of the interpersonal nexus: revealing qualitative research findings on shoulder surgery patients.

Authors:  Nel Glass; K Robyn Ogle
Journal:  J Multidiscip Healthc       Date:  2012-03-13
  2 in total

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