BACKGROUND: This study aimed to evaluate the impact of prenatal diagnosis on parental understanding of congenital heart disease (CHD) in newborns. METHODS: Consenting parents of newborns with CHD answered questions about the cardiac lesion, surgical repair, follow-up management, risk for CHD in future children, and maternal education before neonatal intensive care unit (NICU) discharge. A total understanding score was calculated (0-10) as the sum of five subscores: physician score, CHD score, surgery score, follow-up score, and reproduction score. Each category was scored as 0 (none correct), 1 (some correct), or 2 (all correct). The prenatal and postnatal diagnoses scores were compared. RESULTS: From June 2006 to November 2006, 50 families completed the questionnaire. Of these 50 families, 26 reported a prenatal diagnosis. The mean infant age when the parents were approached was 17.3 +/- 13.3 days. The summary understanding score for the entire group was 6.3 +/- 2.4 of 10. Multivariate regression analysis demonstrated a difference in scores between prenatal and postnatal diagnosis groups (p = 0.02) when control was used for maternal education. Prenatal diagnosis and maternal education (p < 0.01) had independent effects on the score. CONCLUSION: Prenatal diagnosis increases parental understanding of neonatal CHD. Nevertheless, parental understanding remains suboptimal.
BACKGROUND: This study aimed to evaluate the impact of prenatal diagnosis on parental understanding of congenital heart disease (CHD) in newborns. METHODS: Consenting parents of newborns with CHD answered questions about the cardiac lesion, surgical repair, follow-up management, risk for CHD in future children, and maternal education before neonatal intensive care unit (NICU) discharge. A total understanding score was calculated (0-10) as the sum of five subscores: physician score, CHD score, surgery score, follow-up score, and reproduction score. Each category was scored as 0 (none correct), 1 (some correct), or 2 (all correct). The prenatal and postnatal diagnoses scores were compared. RESULTS: From June 2006 to November 2006, 50 families completed the questionnaire. Of these 50 families, 26 reported a prenatal diagnosis. The mean infant age when the parents were approached was 17.3 +/- 13.3 days. The summary understanding score for the entire group was 6.3 +/- 2.4 of 10. Multivariate regression analysis demonstrated a difference in scores between prenatal and postnatal diagnosis groups (p = 0.02) when control was used for maternal education. Prenatal diagnosis and maternal education (p < 0.01) had independent effects on the score. CONCLUSION: Prenatal diagnosis increases parental understanding of neonatal CHD. Nevertheless, parental understanding remains suboptimal.
Authors: K Sarah Hoehn; Gil Wernovsky; Jack Rychik; Zhi-Yun Tian; Denise Donaghue; Melissa A Alderfer; J William Gaynor; Anne E Kazak; Thomas L Spray; Robert M Nelson Journal: Cardiol Young Date: 2004-06 Impact factor: 1.093
Authors: Katherine B Rosenberg; Catherine Monk; Julie S Glickstein; Stephanie M Levasseur; Lynn L Simpson; Charles S Kleinman; Ismee A Williams Journal: J Psychosom Obstet Gynaecol Date: 2010-06 Impact factor: 2.949
Authors: Benjamin J Landis; Allison Levey; Stephanie M Levasseur; Julie S Glickstein; Charles S Kleinman; Lynn L Simpson; Ismee A Williams Journal: Pediatr Cardiol Date: 2012-10-06 Impact factor: 1.655
Authors: Benjamin Zielonka; Brian S Snarr; Michael Y Liu; Xuemei Zhang; Christopher E Mascio; Stephanie Fuller; J William Gaynor; Thomas L Spray; Jack Rychik Journal: J Am Heart Assoc Date: 2019-05-29 Impact factor: 5.501
Authors: Jo Wray; Katherine Brown; Jenifer Tregay; Sonya Crowe; Rachel Knowles; Kate Bull; Faith Gibson Journal: J Med Internet Res Date: 2018-05-09 Impact factor: 5.428