Literature DB >> 18587496

Rising expectations: access to biomedical information.

D A B Lindberg1, B L Humphreys.   

Abstract

OBJECTIVE: To provide an overview of the expansion in public access to electronic biomedical information over the past two decades, with an emphasis on developments to which the U.S. National Library of Medicine contributed.
METHODS: Review of the increasingly broad spectrum of web-accessible genomic data, biomedical literature, consumer health information, clinical trials data, and images.
RESULTS: The amount of publicly available electronic biomedical information has increased dramatically over the past twenty years. Rising expectations regarding access to biomedical information were stimulated by the spread of the Internet, the World Wide Web, advanced searching and linking techniques. These informatics advances simplified and improved access to electronic information and reduced costs, which enabled inter-organizational collaborations to build and maintain large international information resources and also aided outreach and education efforts The demonstrated benefits of free access to electronic biomedical information encouraged the development of public policies that further increase the amount of information available.
CONCLUSIONS: Continuing rapid growth of publicly accessible electronic biomedical information presents tremendous opportunities and challenges, including the need to ensure uninterrupted access during disasters or emergencies and to manage digital resources so they remain available for future generations.

Keywords:  Access to information; clinical trials; consumer health information; digital libraries; genetic databases

Mesh:

Year:  2008        PMID: 18587496      PMCID: PMC2441483     

Source DB:  PubMed          Journal:  Yearb Med Inform        ISSN: 0943-4747


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  11 in total

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Authors:  Jeffrey T Huber; Emily B Kean; Philip D Fitzgerald; Trina A Altman; Zach G Young; Katherine M Dupin; Jacqueline Leskovec; Ruth Holst
Journal:  J Med Libr Assoc       Date:  2011-10

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3.  Preface - Access to Knowledge Revisited.

Authors:  D A B Lindberg; B L Humphreys
Journal:  Yearb Med Inform       Date:  2016-05-20

4.  The Renewed Promise of Medical Informatics.

Authors:  J H van Bemmel; A T McCray
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5.  The multiple dimensions of expanded access to health information: Don Lindberg and the U.S. National Library of Medicine.

Authors:  Betsy L Humphreys
Journal:  Inf Serv Use       Date:  2022-06-10

Review 6.  Towards a data publishing framework for primary biodiversity data: challenges and potentials for the biodiversity informatics community.

Authors:  Vishwas S Chavan; Peter Ingwersen
Journal:  BMC Bioinformatics       Date:  2009-11-10       Impact factor: 3.169

7.  MeSHing molecular sequences and clinical trials: a feasibility study.

Authors:  Elizabeth S Chen; Indra Neil Sarkar
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8.  The data paper: a mechanism to incentivize data publishing in biodiversity science.

Authors:  Vishwas Chavan; Lyubomir Penev
Journal:  BMC Bioinformatics       Date:  2011       Impact factor: 3.169

9.  The dream of health information for all.

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10.  Identifying Psychiatric Comorbidities for Obstructive Sleep Apnea in the Biomedical Literature and Electronic Health Record.

Authors:  Jessica M Haddad; Elizabeth S Chen
Journal:  AMIA Jt Summits Transl Sci Proc       Date:  2017-07-26
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