Literature DB >> 18584308

Improving a newly developed patient-reported outcome for thyroid patients, using cognitive interviewing.

Torquil Watt1, Ase Krogh Rasmussen, Mogens Groenvold, Jakob Bue Bjorner, Sara Hope Watt, Steen Joop Bonnema, Laszlo Hegedüs, Ulla Feldt-Rasmussen.   

Abstract

OBJECTIVE: To improve a newly developed patient-reported outcome measure for thyroid patients using cognitive interviewing.
METHODS: Thirty-one interviews using immediate retrospective and expansive probing were conducted among patients with non-toxic goiter (n = 4), nodular toxic goiter (n = 5) Graves' disease (n = 6), thyroid eye-disease (n = 6), and primary hypothyroidism (n = 10). The questionnaire was revised successively. Six iterative rounds of interviews were conducted. Identified problems were categorized according to Tourangeau's four-stage model.
RESULTS: Problems were identified 126 times in 43 of the 99 tested items, four of the 15 introductions, and four of the five response categories. Fifty-four problems involved comprehension, one retrieval, 23 judgment, 28 response, and 20 were not applicable to the four-stage model. Among all problems identified, 18 concerned attribution, i.e. whether or not to report only issues considered of thyroid causality. Within each round of interviews, the number of problems declined from an initial average of six per interview to two, mainly due to a reduction in the number of problems associated with comprehension. The least amount of reduction was within the set of problems involving attribution.
CONCLUSION: The cognitive interview methodology was effective in identifying and reducing problems within the questionnaire responding process. Patients tended to selectively report problems they considered to be caused by their thyroid disease even when specifically instructed not to.

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Year:  2008        PMID: 18584308     DOI: 10.1007/s11136-008-9364-z

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  23 in total

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5.  Graves' disease: a long-term quality-of-life follow up of patients randomized to treatment with antithyroid drugs, radioiodine, or surgery.

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6.  Impaired health-related quality of life in Graves' disease. A prospective study.

Authors:  T V Elberling; A K Rasmussen; U Feldt-Rasmussen; M Hørding; H Perrild; G Waldemar
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Review 7.  Antithyroid drug regimen for treating Graves' hyperthyroidism.

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8.  Health-related quality of life in patients with thyroid disorders.

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Review 9.  Quality of life in patients with benign thyroid disorders. A review.

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5.  Establishing construct validity for the thyroid-specific patient reported outcome measure (ThyPRO): an initial examination.

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7.  Improvement of quality of life in patients with benign goiter after surgical treatment.

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8.  Conversion of standard retrospective patient-reported outcomes to momentary versions: cognitive interviewing reveals varying degrees of momentary compatibility.

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9.  Cross-cultural validity of the thyroid-specific quality-of-life patient-reported outcome measure, ThyPRO.

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10.  Radioiodine treatment for non-toxic goitre.

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