Literature DB >> 18573581

Caring for independent lives: geographies of caring for young adults with intellectual disabilities.

Andrew Power1.   

Abstract

This paper engages with the emerging disciplinary clash between 'care' and 'independence' within disability studies by examining the geography of home care for young adults with intellectual disabilities. The care system as a whole is viewed as central to disablist structures within disability studies (see Thomas, C. (2007). Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Hampshire: Palgrave Macmillan.). However, despite the theorisation of dependency as being in antipathy to the goals of the disability movement, caregiving at home still continues to dominate community care. The paper attempts to address how family carers are 'caught-in-the-middle' between their 'duty' to care and at the same time, perpetuating dependency; the reality being that parents have to deal with issues of being overprotective and confronting various social assumptions about disability. It examines the narratives from 25 family caregivers in Ireland who provide personal assistance to young adults with intellectual disabilities.

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Year:  2008        PMID: 18573581     DOI: 10.1016/j.socscimed.2008.05.023

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  3 in total

1.  Health of parents of individuals with developmental disorders or mental health problems: Impacts of stigma.

Authors:  Jieun Song; Marsha R Mailick; Jan S Greenberg
Journal:  Soc Sci Med       Date:  2018-10-15       Impact factor: 4.634

2.  Translating and Transforming Care: People With Brain Injury and Caregivers Filling in a Disability Claim Form.

Authors:  Alex Gillespie; Helen Moore
Journal:  Qual Health Res       Date:  2015-03-19

3.  Experiences of Loneliness Associated with Being an Informal Caregiver: A Qualitative Investigation.

Authors:  Konstantina Vasileiou; Julie Barnett; Manuela Barreto; John Vines; Mark Atkinson; Shaun Lawson; Michael Wilson
Journal:  Front Psychol       Date:  2017-04-19
  3 in total

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