Literature DB >> 18568706

Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration.

Hélène Lefebvre1, Geneviève Cloutier, Marie Josée Levert.   

Abstract

BACKGROUND: Traumatic brain injury (TBI) has damaging impacts on victims and family members' lives and their long-term social integration constitutes a major challenge.
PURPOSE: The objective of the study was to document the repercussions of TBI on victims' long-term social integration (10 years post-trauma) and the contribution made by the services received from the point of view of TBI victims and family caregivers. This article examines the determinants of long-term social integration as well as the impact of TBI on family caregivers.
METHODS: A qualitative design was used (semi-directed interviews). The sample consisted of 22 individuals who had sustained a moderate or severe TBI and 21 family caregivers.
RESULTS: The results show that TBI is an experience that continues to present difficulties, even 10 years after the accident, and that different barriers contribute to this difficulty: not going back to work, depressive episodes, problems in relationships and sequellae. Family caregivers must help TBI victims confront the barriers in their path. IMPLICATIONS: This study adopts a longitudinal perspective to help professionals determine how to intervene with TBI victims and their families. It validates the importance of having clients and family caregivers describe their reality.

Entities:  

Mesh:

Year:  2008        PMID: 18568706     DOI: 10.1080/02699050802158243

Source DB:  PubMed          Journal:  Brain Inj        ISSN: 0269-9052            Impact factor:   2.311


  12 in total

1.  Mental Trauma Affliction and Infliction: Punishment and Atonement for Sins?

Authors:  Syed Tajuddin Syed Hassan; Husna Jamaludin; Latiffah Abdul Latiff; Rosna Abdul Raman; Wan Fei Khaw
Journal:  Bull Emerg Trauma       Date:  2014-10

2.  Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life.

Authors:  Anna L Kratz; Angelle M Sander; Tracey A Brickell; Rael T Lange; Noelle E Carlozzi
Journal:  Neuropsychol Rehabil       Date:  2015-06-08       Impact factor: 2.868

3.  Living with traumatic brain injury in a rural setting: supports and barriers across the continuum of care.

Authors:  Anne L Harrison; Elizabeth G Hunter; Heather Thomas; Paige Bordy; Erin Stokes; Patrick Kitzman
Journal:  Disabil Rehabil       Date:  2016-08-22       Impact factor: 3.033

4.  Predicting caregiver burden over the first 4 months after acute traumatic brain injury in Latin America: a multi-country study.

Authors:  Mickeal Pugh; Paul B Perrin; Juan Carlos Arango-Lasprilla
Journal:  Brain Inj       Date:  2021-04-06       Impact factor: 2.167

5.  Cross-sectional analysis of data from the U.S. clinical trials database reveals poor translational clinical trial effort for traumatic brain injury, compared with stroke.

Authors:  Lucia M Li; David K Menon; Tobias Janowitz
Journal:  PLoS One       Date:  2014-01-08       Impact factor: 3.240

6.  Initial experiences of family caregivers of survivors of a traumatic brain injury.

Authors:  Mandi Broodryk; Chrisma Pretorius
Journal:  Afr J Disabil       Date:  2015-08-11

7.  The Impact of Psycho-Social Interventions on the Wellbeing of Individuals With Acquired Brain Injury During the COVID-19 Pandemic.

Authors:  Lowri Wilkie; Pamela Arroyo; Harley Conibeer; Andrew Haddon Kemp; Zoe Fisher
Journal:  Front Psychol       Date:  2021-03-25

8.  Family members' perceptions of pain behaviors and pain management of adult patients unable to self-report in the intensive care unit: A qualitative descriptive study.

Authors:  Melissa Richard-Lalonde; Madalina Boitor; Sarah Mohand-Saïd; Céline Gélinas
Journal:  Can J Pain       Date:  2018-11-26

9.  Providing Verbal Assistance When Assessing Individuals Living with a Traumatic Brain Injury.

Authors:  Mireille Gagnon-Roy; Nathalie Bier; Stéphanie Boulé-Riley; Heidi Keurentjes; Priscilla Lam Wai Shun; Guylaine Le Dorze; Carolina Bottari
Journal:  Can J Occup Ther       Date:  2021-08-31       Impact factor: 1.614

10.  Evaluation of the acceptability, feasibility and effectiveness of two methods of involving patients with disability in developing clinical guidelines: study protocol of a randomized pragmatic pilot trial.

Authors:  Marie-Eve Lamontagne; Kadija Perreault; Marie-Pierre Gagnon
Journal:  Trials       Date:  2014-04-10       Impact factor: 2.279

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