Literature DB >> 18547542

The MacDQoL individualized measure of the impact of macular degeneration on quality of life: reliability and responsiveness.

Jan Mitchell1, James Wolffsohn, Alison Woodcock, Stephen J Anderson, Timothy Ffytche, Martin Rubinstein, Winfried Amoaku, Clare Bradley.   

Abstract

PURPOSE: To investigate the MacDQoL test-retest reliability and sensitivity to change in vision over a period of one year in a sample of patients with age-related macular degeneration (AMD).
DESIGN: A prospective, observational study.
METHOD: Patients with AMD from an ophthalmologist's list (n = 135) completed the MacDQoL questionnaire by telephone interview and underwent a vision assessment on two occasions, one year apart.
RESULTS: Among participants whose vision was stable over one year (n = 87), MacDQoL scores at baseline and follow-up were highly correlated (r = 0.95; P < .0001). Twelve of the 22 scale items had intraclass correlations of >.80; only two were correlated <.7. There was no difference between baseline and follow-up scores (P = .85), indicating excellent test-retest reliability. Poorer quality of life (QoL) at follow-up, measured by the MacDQoL present QoL overview item, was associated with deterioration in both the better eye and binocular distance visual acuity [VA] (r = 0.29; P = .001, r = 0.21; P = .016, respectively; n = 135). There was a positive correlation between deterioration in the MacDQoL average weighted impact score and deterioration in both binocular near VA and reading speed (r = 0.20; P = .019, r = 0.18; P = .041, respectively; n = 135).
CONCLUSION: The MacDQoL has excellent test-retest reliability. Its sensitivity to change in vision status was demonstrated in correlational analyses. The measure indicates that the negative impact of AMD on QoL increases with increasing severity of visual impairment.

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Mesh:

Year:  2008        PMID: 18547542     DOI: 10.1016/j.ajo.2008.04.031

Source DB:  PubMed          Journal:  Am J Ophthalmol        ISSN: 0002-9394            Impact factor:   5.258


  12 in total

1.  An enhanced functional ability questionnaire (faVIQ) to measure the impact of rehabilitation services on the visually impaired.

Authors:  James Stuart Wolffsohn; Jonathan Jackson; Olivia Anne Hunt; Charles Cottriall; Jennifer Lindsay; Richard Gilmour; Anne Sinclair; Robert Harper
Journal:  Int J Ophthalmol       Date:  2014-02-18       Impact factor: 1.779

2.  Assessing reading performance in the periphery with a Bayesian adaptive approach: The qReading method.

Authors:  Timothy G Shepard; Fang Hou; Peter J Bex; Luis A Lesmes; Zhong-Lin Lu; Deyue Yu
Journal:  J Vis       Date:  2019-05-01       Impact factor: 2.240

3.  Reliability, validity and responsiveness of the Greek MacDQoL individualized measure of the impact of macular degeneration on quality of life.

Authors:  Theodoros P Marakis; Chrysanthi Koutsandrea; Klio I Chatzistefanou; Yannis Tountas
Journal:  Qual Life Res       Date:  2016-09-10       Impact factor: 4.147

4.  Bayesian adaptive assessment of the reading function for vision: The qReading method.

Authors:  Fang Hou; Yukai Zhao; Luis Andres Lesmes; Peter Bex; Deyue Yu; Zhong-Lin Lu
Journal:  J Vis       Date:  2018-09-04       Impact factor: 2.240

5.  Generic and disease-specific estimates of quality of life in macular degeneration: mapping the MacDQoL onto the EQ-5D-3L.

Authors:  Padraig Dixon; Helen Dakin; Sarah Wordsworth
Journal:  Qual Life Res       Date:  2015-10-01       Impact factor: 4.147

6.  Treatment Satisfaction and Well-Being in Patients with Myopic Choroidal Neovascularization Treated with Ranibizumab in the REPAIR Study.

Authors:  Winfried M Amoaku; Richard P Gale; Andrew J Lotery; Geeta Menon; Sobha Sivaprasad; Jennifer Petrillo; Jennifer Quinn
Journal:  PLoS One       Date:  2015-06-03       Impact factor: 3.240

Review 7.  "The patient is speaking": discovering the patient voice in ophthalmology.

Authors:  Samera Dean; Jonathan M Mathers; Melanie Calvert; Derek G Kyte; Dolores Conroy; Annie Folkard; Sue Southworth; Philip I Murray; Alastair K Denniston
Journal:  Br J Ophthalmol       Date:  2017-04-28       Impact factor: 4.638

Review 8.  An introduction to patient-reported outcome measures in ophthalmic research.

Authors:  A K Denniston; D Kyte; M Calvert; J M Burr
Journal:  Eye (Lond)       Date:  2014-03-14       Impact factor: 3.775

9.  Enhanced text spacing improves reading performance in individuals with macular disease.

Authors:  Sally Blackmore-Wright; Mark A Georgeson; Stephen J Anderson
Journal:  PLoS One       Date:  2013-11-11       Impact factor: 3.240

Review 10.  The impact of a better-seeing eye and a worse-seeing eye on vision-related quality of life.

Authors:  Christoph Hirneiss
Journal:  Clin Ophthalmol       Date:  2014-09-03
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