Literature DB >> 18509105

Consensus statement on genetic research in dementia.

Marcel G M Olde Rikkert1, Anco van der Vorm, Alistair Burns, Wim Dekkers, Philipp Robert, Norman Sartorius, Jacques Selmes, Gabriela Stoppe, Myrra Vernooij-Dassen, Gunhild Waldemar.   

Abstract

In this article, the authors describe how the European Dementia Consensus Network developed a consensus on research ethics in dementia, taking into account the questions posed by the era of genetic research and its new research methods. The consensus process started with a Delphi procedure to analyze relevant stakeholders' positions by describing their statements on the possibilities and limitations of research into genetic determinants of Alzheimer disease and to describe and analyze the moral desirability of genetic research on Alzheimer disease. The conclusions drawn from the Delphi procedure fuelled the development of the consensus statement, which is presented in this paper. The consensus statement aims to stimulate ethically acceptable research in the field of dementia and the protection of vulnerable elderly patients with dementia from application of inadequate research methods or designs.

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Year:  2008        PMID: 18509105     DOI: 10.1177/1533317508317817

Source DB:  PubMed          Journal:  Am J Alzheimers Dis Other Demen        ISSN: 1533-3175            Impact factor:   2.035


  2 in total

1.  Validation of consensus panel diagnosis in dementia.

Authors:  Matthew J Gabel; Norman L Foster; Judith L Heidebrink; Roger Higdon; Howard J Aizenstein; Steven E Arnold; Nancy R Barbas; Bradley F Boeve; James R Burke; Christopher M Clark; Steven T Dekosky; Martin R Farlow; William J Jagust; Claudia H Kawas; Robert A Koeppe; James B Leverenz; Anne M Lipton; Elaine R Peskind; R Scott Turner; Kyle B Womack; Edward Y Zamrini
Journal:  Arch Neurol       Date:  2010-12

2.  The full spectrum of ethical issues in dementia research: findings of a systematic qualitative review.

Authors:  Tim G Götzelmann; Hannes Kahrass; Daniel Strech
Journal:  BMC Med Ethics       Date:  2021-03-26       Impact factor: 2.652

  2 in total

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