Literature DB >> 18426257

Family decision making: benefits to persons with developmental disabilities and their family members.

Susan Neely-Barnes1, J Carolyn Graff, Maureen Marcenko, Lisa Weber.   

Abstract

Family involvement in planning and choosing services has become a key intervention concept in developmental disability services. This study (N = 547) modeled patterns of family decision making and assessed benefits to persons with developmental disabilities (DDs) and their family members. A latent profile analysis identified 4 classes that were highly involved in decision making (n = 118), involved only in planning (n = 166), involved only in financial decisions (n = 75), and uninvolved (n = 188). Multiple regression analysis indicated that consumers with DD whose family members were highly involved received more services than consumers in other families. A multivariate analysis of covariance indicated that the family members in the highly involved and planning classes experienced more family member satisfaction than others. Findings have implications for practice.

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Year:  2008        PMID: 18426257     DOI: 10.1352/0047-6765(2008)46[93:FDMBTP]2.0.CO;2

Source DB:  PubMed          Journal:  Intellect Dev Disabil        ISSN: 1934-9491


  3 in total

1.  "It's our job": qualitative study of family responses to ableism.

Authors:  Susan L Neely-Barnes; J Carolyn Graff; Ruth J Roberts; Heather R Hall; Jane S Hankins
Journal:  Intellect Dev Disabil       Date:  2010-08

2.  Validation of an instrument to assess the delivery of patient-centred care to people with intellectual disabilities as perceived by professionals.

Authors:  Jane Murray Cramm; Anna Petra Nieboer
Journal:  BMC Health Serv Res       Date:  2017-07-11       Impact factor: 2.655

3.  Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families.

Authors:  Rie Wakimizu; Keiko Yamaguchi; Hiroshi Fujioka
Journal:  Int J Nurs Sci       Date:  2016-12-13
  3 in total

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