Literature DB >> 18420538

I have mastered the challenge of living with a chronic disease: life stories of people with rheumatoid arthritis.

Tanja Stamm1, Linda Lovelock, Graham Stew, Valerie Nell, Josef Smolen, Hans Jonsson, Gaynor Sadlo, Klaus Machold.   

Abstract

Our aim with this study was to explore the narrative life story of individuals diagnosed with rheumatoid arthritis. An open qualitative approach, namely narrative biographic methodology, was applied to include the life context of the participants and to deliberately exclude predefinitions of concepts. Ten people with rheumatoid arthritis who retired early because of the disease participated and were interviewed three times according to a narrative biographic interview style. The biographical data and the interview texts were analyzed both individually and in comparison to each other. Some participants regarded rheumatoid arthritis as a challenge for mastery in their lives, whereas others adapted to the disease and "made the best out of a bad situation." Especially in countries where the medical model predominates in health care, our findings can be used to broaden the current view that some health professionals have toward patients, and stress the importance of patients being self-responsible.

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Year:  2008        PMID: 18420538     DOI: 10.1177/1049732308316348

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  18 in total

1.  Daily functioning and health status in patients with hand osteoarthritis: Fewer differences between women and men than expected.

Authors:  Tanja A Stamm; Klaus Machold; Enijad Sahinbegovic; Stefanie Haider; Michaela Ernst; Alexa Binder; Toma Dallos; Jochen Zwerina; Josef Smolen
Journal:  Wien Klin Wochenschr       Date:  2011-10       Impact factor: 1.704

2.  The effect of the Arthritis Self-Management Program on outcome in African Americans with rheumatoid arthritis served by a public hospital.

Authors:  Doyt L Conn; Yi Pan; Kirk A Easley; Dawn L Comeau; Joyce P Carlone; Steven D Culler; Athan Tiliakos
Journal:  Clin Rheumatol       Date:  2012-09-29       Impact factor: 2.980

Review 3.  [Health-related quality of life (HRQoL) in rheumatoid arthritis].

Authors:  T Stamm
Journal:  Z Rheumatol       Date:  2010-05       Impact factor: 1.372

4.  Coping with arthritis is experienced as a dynamic balancing process. A qualitative study.

Authors:  Kjersti Grønning; Borghild Lomundal; Hege Svean Koksvik; Aslak Steinsbekk
Journal:  Clin Rheumatol       Date:  2011-09-03       Impact factor: 2.980

5.  Health care utilisation in subjects with osteoarthritis, chronic back pain and osteoporosis aged 65 years and more: mediating effects of limitations in activities of daily living, pain intensity and mental diseases.

Authors:  Tanja Alexandra Stamm; Karin Pieber; Gerhard Blasche; Thomas Ernst Dorner
Journal:  Wien Med Wochenschr       Date:  2014-01-28

6.  Child abuse in young, HIV-positive women: linkages to risk.

Authors:  Gretchen A Clum; Katherine Andrinopoulos; Kathryn Muessig; Jonathan M Ellen
Journal:  Qual Health Res       Date:  2009-12

7.  "Striving for a good life" - the management of rheumatoid arthritis as experienced by patients.

Authors:  Ulrika Bergsten; Stefan Bergman; Bengt Fridlund; Barbro Arvidsson
Journal:  Open Nurs J       Date:  2011-11-04

8.  Patient participation as an integral part of patient-reported outcomes development ensures the representation of the patient voice: a case study from the field of rheumatology.

Authors:  M P T de Wit; T K Kvien; L Gossec
Journal:  RMD Open       Date:  2015-08-05

Review 9.  Lay and health care professional understandings of self-management: A systematic review and narrative synthesis.

Authors:  Euan Sadler; Charles D A Wolfe; Christopher McKevitt
Journal:  SAGE Open Med       Date:  2014-08-28

Review 10.  Health determining concepts important to people with Crohn's disease and their coverage by patient-reported outcomes of health and wellbeing.

Authors:  Mona Dür; Martina Sadloňová; Stefanie Haider; Alexa Binder; Michaela Stoffer; Michaela Coenen; Josef Smolen; Clemens Dejaco; Alexandra Kautzky-Willer; Veronika Fialka-Moser; Gabriele Moser; Tanja Alexandra Stamm
Journal:  J Crohns Colitis       Date:  2013-01-31       Impact factor: 9.071

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