Literature DB >> 18401462

The Governance of Genomic Information: Will it Come of Age?

Adèle Langlois.   

Abstract

The completion of the Human Genome Project has opened up unprecedented possibilities in healthcare, but also ethical and social dilemmas in terms of how these can be achieved. Genomic information can be seen as a "global public good" (GPG), in that it is represented by knowledge in the public domain and across national boundaries. Lack of investment, infrastructure and expertise in developing countries means that they are unable to take advantage of these GPG characteristics to address their health needs, fuelling fears of a growing "genomics divide". Some have suggested an international knowledge sharing and capacity building network, a Global Genomics Initiative, as a means to harness the potential of genomics to reduce inequalities in health between North and South. Three UNESCO declarations also call for cooperation between developed and developing countries in genomics research and science and technology in general. Using international relations theories around global governance and networks as a conceptual framework, this paper examines whether these initiatives are likely to succeed in providing effective governance of genomics.

Entities:  

Year:  2006        PMID: 18401462      PMCID: PMC2291236          DOI: 10.1186/1746-5354-2-3-49

Source DB:  PubMed          Journal:  Genom Soc Policy        ISSN: 1746-5354


  10 in total

1.  Commentary: justice and medical research: a global perspective.

Authors:  S R Benatar
Journal:  Bioethics       Date:  2001-08       Impact factor: 1.898

2.  Harnessing genomics and biotechnology to improve global health equity.

Authors:  P A Singer; A S Daar
Journal:  Science       Date:  2001-10-05       Impact factor: 47.728

3.  Global public goods and health: taking the agenda forward.

Authors:  I Kaul; M Faust
Journal:  Bull World Health Organ       Date:  2001-10-23       Impact factor: 9.408

4.  Reflections and recommendations on research ethics in developing countries.

Authors:  S R Benatar
Journal:  Soc Sci Med       Date:  2002-04       Impact factor: 4.634

5.  Genomics knowledge and equity: a global public goods perspective of the patent system.

Authors:  Richard D Smith; Halla Thorsteinsdóttir; Abdallah S Daar; E Richard Gold; Peter A Singers
Journal:  Bull World Health Organ       Date:  2004-05       Impact factor: 9.408

6.  Elaboration of the Declaration on Universal Norms on Bioethics: third outline of a text.

Authors: 
Journal:  J Int Bioethique       Date:  2004 Jun-Sep

7.  Genomics--a global public good?

Authors:  Halla Thorsteinsdóttir; Abdallah S Daar; Richard D Smith; Peter A Singer
Journal:  Lancet       Date:  2003-03-15       Impact factor: 79.321

8.  Global public goods and health.

Authors:  Richard D Smith
Journal:  Bull World Health Organ       Date:  2003-09-03       Impact factor: 9.408

9.  Global disparities in health and human rights: a critical commentary.

Authors:  S R Benatar
Journal:  Am J Public Health       Date:  1998-02       Impact factor: 9.308

10.  Human rights in the biotechnology era 1.

Authors:  Solomon R Benatar
Journal:  BMC Int Health Hum Rights       Date:  2002-04-17
  10 in total
  1 in total

1.  Genomics governance: advancing justice, fairness and equity through the lens of the African communitarian ethic of Ubuntu.

Authors:  Nchangwi Syntia Munung; Jantina de Vries; Bridget Pratt
Journal:  Med Health Care Philos       Date:  2021-04-02
  1 in total

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