Literature DB >> 18389436

The meaning of women's experiences of living with multiple sclerosis.

Malin Olsson1, Jan Lexell, Siv Söderberg.   

Abstract

We conducted a qualitative inquiry in order to describe the meaning of women's experiences of living with multiple sclerosis (MS). Multiple sclerosis is a chronic autoimmune disease of the central nervous system. The majority of persons living with MS are women. Living with MS has been described as difficult because of the uncertainty of the illness. Ten women with MS were interviewed and the interviews were analyzed with a phenomenological hermeneutic interpretation. In this study, we suggest that the meaning of living with MS for women can be understood as trying to maintain power and living with an unrecognizable body. The bodies of women with MS serve as hindrances in everyday life. Bodily changes evident to others impose feelings of being met in a different way, which can be understood as an expression of a violated dignity. At the same time, the women with MS struggle to protect their dignity.

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Year:  2008        PMID: 18389436     DOI: 10.1080/07399330701876646

Source DB:  PubMed          Journal:  Health Care Women Int        ISSN: 0739-9332


  9 in total

1.  "Putting one foot in front of the other": a qualitative study of emotional experiences and help-seeking in women with multiple sclerosis.

Authors:  Joanna Blundell Jones; Sue Walsh; Claire Isaac
Journal:  J Clin Psychol Med Settings       Date:  2014-12

2.  Meanings of being received and met by others as experienced by women with MS.

Authors:  Malin Olsson; Lisa Skär; Siv Söderberg
Journal:  Int J Qual Stud Health Well-being       Date:  2011-03-07

3.  Meanings of feeling well among women with Parkinson's disease.

Authors:  Malin Olsson; Carina Nilsson
Journal:  Int J Qual Stud Health Well-being       Date:  2015-10-20

Review 4.  The Relational Impact of Multiple Sclerosis: An Integrative Review of the Literature Using a Cognitive Analytic Framework.

Authors:  Joanna Blundell Jones; Sue Walsh; Claire Isaac
Journal:  J Clin Psychol Med Settings       Date:  2017-12

5.  The Liberation Procedure Decision-Making Experience for People With Multiple Sclerosis.

Authors:  Cynthia L Murray; Michelle Ploughman; Chelsea Harris; Stephen Hogan; Michelle Murdoch; Mark Stefanelli
Journal:  Glob Qual Nurs Res       Date:  2014-10-08

6.  The Mindful Body: A Phenomenology of the Body With Multiple Sclerosis.

Authors:  Hanneke van der Meide; Truus Teunissen; Pascal Collard; Merel Visse; Leo H Visser
Journal:  Qual Health Res       Date:  2018-09-10

7.  Multiple challenges for people after transitioning to secondary progressive multiple sclerosis: a qualitative study.

Authors:  Angeliki Bogosian; Myfanwy Morgan; Rona Moss-Morris
Journal:  BMJ Open       Date:  2019-03-08       Impact factor: 2.692

8.  Experiences of quality of life in people with Multiple Sclerosis who are in a wheelchair.

Authors:  Stine Torp Løkkeberg; Gunnar Thoresen
Journal:  Nurs Open       Date:  2021-05-30

9.  Narratives reflecting the lived experiences of people with brain disorders: common psychosocial difficulties and determinants.

Authors:  Sally Hartley; Maggie McArthur; Michaela Coenen; Maria Cabello; Venusia Covelli; Joanna Roszczynska-Michta; Tuuli Pitkänen; Jerome Bickenbach; Alarcos Cieza
Journal:  PLoS One       Date:  2014-05-07       Impact factor: 3.240

  9 in total

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