Literature DB >> 18386168

Differentiating subgroups of children with special health care needs by health status and complexity of health care needs.

Matthew D Bramlett1, Debra Read, Christina Bethell, Stephen J Blumberg.   

Abstract

OBJECTIVES: Our objective is to use the Children with Special Health Care Needs (CSHCN) Screener to identify subgroups of CSHCN differentiated by health status and complexity of need.
METHODS: Data are from the National Survey of Children with Special Health Care Needs, 2001 and the National Survey of Children's Health, 2003 (conducted by the Maternal and Child Health Bureau and the National Center for Health Statistics); and the 2001 and 2002 Medical Expenditure Panel Survey, conducted by the Agency for Healthcare Research and Quality. A broad array of variables measuring health status, complexity of need, and related issues are examined by subgroupings of CSHCN.
RESULTS: Relative to other CSHCN, CSHCN with functional limitations or who qualify on more CSHCN Screener items have poorer health status and more complex health care needs. They more often experience a variety of health issues; their insurance is more often inadequate; the impact of their conditions on their families is higher; and their medical costs are higher.
CONCLUSION: In the absence of information on specific conditions, health status, or complexity of need, the CSHCN Screener alone can be used to create useful analytic subgroups that differ on these dimensions. The proposed subgroups, based on the type or number of CSHCN screening criteria, differentiate CSHCN by health status and complexity of health care needs, and also show differences in the impact of their conditions on their families, costs of their medical care, and prevalence of various health problems.

Entities:  

Mesh:

Year:  2008        PMID: 18386168     DOI: 10.1007/s10995-008-0339-z

Source DB:  PubMed          Journal:  Matern Child Health J        ISSN: 1092-7875


  24 in total

1.  Comparison of the children with special health care needs screener to the questionnaire for identifying children with chronic conditions--revised.

Authors:  Christina D Bethell; Debra Read; John Neff; Stephen J Blumberg; Ruth E K Stein; Virginia Sharp; Paul W Newacheck
Journal:  Ambul Pediatr       Date:  2002 Jan-Feb

2.  Factors associated with ease of using community-based systems of care for CSHCN in Hawai'i.

Authors:  Gigliola Baruffi; Lloyd Miyashiro; Cheryl B Prince; Patricia Heu
Journal:  Matern Child Health J       Date:  2005-06

3.  Delayed and forgone care for children with special health care needs in New York State.

Authors:  Arlene Smaldone; Judy Honig; Mary W Byrne
Journal:  Matern Child Health J       Date:  2005-06

4.  CSHCN in Texas: meeting the need for specialist care.

Authors:  M Cherilyn Young; Vonna L C Drayton; Ramdas Menon; Lesa R Walker; Colleen M Parker; Sam B Cooper; Linda L Bultman
Journal:  Matern Child Health J       Date:  2005-06

5.  Factors associated with health care access for Mississippi children with special health care needs.

Authors:  Debra J Kane; Marianne E Zotti; Deborah Rosenberg
Journal:  Matern Child Health J       Date:  2005-06

6.  The association of child condition severity with family functioning and relationship with health care providers among children and youth with special health care needs in Alabama.

Authors:  Beverly A Mulvihill; Martha Slay Wingate; Maja Altarac; Francis X Mulvihill; David T Redden; Joseph Telfair; Mary Ann Pass; Dawn E Ellis
Journal:  Matern Child Health J       Date:  2005-06

7.  Characteristics of coordinated ongoing comprehensive care within a medical home in Maine.

Authors:  Kathy Tippy; Katie Meyer; Richard Aronson; Toni Wall
Journal:  Matern Child Health J       Date:  2005-06

8.  Design and operation of the National Survey of Children with Special Health Care Needs, 2001.

Authors:  Stephen J Blumberg; Lorayn Olson; Martin Frankel; Larry Osborn; Christopher J Becker; K P Srinath; Pamela Giambo
Journal:  Vital Health Stat 1       Date:  2003-06

9.  Childhood chronic illness: prevalence, severity, and impact.

Authors:  P W Newacheck; W R Taylor
Journal:  Am J Public Health       Date:  1992-03       Impact factor: 9.308

10.  The Questionnaire for Identifying Children with Chronic Conditions: a measure based on a noncategorical approach.

Authors:  R E Stein; L E Westbrook; L J Bauman
Journal:  Pediatrics       Date:  1997-04       Impact factor: 7.124

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  37 in total

1.  A national profile of caregiver challenges among more medically complex children with special health care needs.

Authors:  Dennis Z Kuo; Eyal Cohen; Rishi Agrawal; Jay G Berry; Patrick H Casey
Journal:  Arch Pediatr Adolesc Med       Date:  2011-11

2.  Care of the complex chronically ill child by generalist pediatricians: lessons learned from pediatric palliative care.

Authors:  Jennifer K Walter; Lisa Ross DeCamp; Kavita S Warrier; Terrance P Murphy; Patricia M Keefer
Journal:  Hosp Pediatr       Date:  2013-04

3.  Ambulatory quality, special health care needs, and emergency department or hospital use for US children.

Authors:  Ryan J Coller; Michelle M Kelly; Daniel J Sklansky; Kristin A Shadman; Mary L Ehlenbach; Christina B Barreda; Paul J Chung; Qianqian Zhao; Marshall Bruce Edmonson
Journal:  Health Serv Res       Date:  2020-06-27       Impact factor: 3.402

4.  Identifying Children with Special Health Care Needs Using Medicaid Data in New York State Medicaid Managed Care.

Authors:  Lauren S Miller; Meng Wu; Anne M Schettine; Lindsay W Cogan
Journal:  Health Serv Res       Date:  2018-09-21       Impact factor: 3.402

5.  Conducting Accessible Research: Including People With Disabilities in Public Health, Epidemiological, and Outcomes Studies.

Authors:  Dianne Rios; Susan Magasi; Catherine Novak; Mark Harniss
Journal:  Am J Public Health       Date:  2016-10-13       Impact factor: 9.308

6.  Parent-Reported Health Consequences and Relationship to Expenditures in Children with ADHD.

Authors:  Neal A deJong; Christianna S Williams; Kathleen C Thomas
Journal:  Matern Child Health J       Date:  2016-04

7.  Strategies to Maximize Data Collection Response Rates in a Randomized Control Trial Focused on Children with Medical Complexity.

Authors:  Stanley M Finkelstein; Margaret Celebrezze; Rhonda Cady; Scott Lunos; Wendy S Looman
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8.  Predictors of Unmet Family Support Service Needs in Families of Children with Special Health Care Needs.

Authors:  Genevieve Graaf; Izabela Annis; Regina Martinez; Kathleen C Thomas
Journal:  Matern Child Health J       Date:  2021-05-03

Review 9.  Taking stock of the CSHCN screener: a review of common questions and current reflections.

Authors:  Christina D Bethell; Stephen J Blumberg; Ruth E K Stein; Bonnie Strickland; Julie Robertson; Paul W Newacheck
Journal:  Acad Pediatr       Date:  2014-12-05       Impact factor: 3.107

10.  Medical Complexity among Children with Special Health Care Needs: A Two-Dimensional View.

Authors:  Ryan J Coller; Carlos F Lerner; Jens C Eickhoff; Thomas S Klitzner; Daniel J Sklansky; Mary Ehlenbach; Paul J Chung
Journal:  Health Serv Res       Date:  2015-11-30       Impact factor: 3.402

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