Literature DB >> 18363492

Ethnic variation in timing of hospice referral: does having no informal caregiver matter?

Kyusuk Chung1, Elizabeth Essex, Linda F Samson.   

Abstract

BACKGROUND: The length of hospice stay, as an indicator of timing of hospice referral, is an important outcome to examine in end-of-life care because it is relevant to the quality and cost efficiency of end-of-life care that patients receive. Although the majority receives nonmedical care from informal caregivers, many elderly hospice users rely on paid caregivers or staff of residential facilities.
OBJECTIVE: This study examined whether availability of informal primary caregiver interact with ethnicity to affect length of hospice stay.
DESIGN: A retrospective cross-sectional study. SETTING/
SUBJECTS: Data on 3024 hospice patients aged 65 and older discharged between 1997 and 2000 was extracted from the National Center for Health Statistics' National Home and Hospice Care Survey (NHHCS). MEASUREMENTS: Length of hospice stay prior to death or discharge.
RESULTS: Survival analysis revealed that among patients with formal caregivers, minority patients were likely to have significantly shorter hospice stays than non-Hispanic whites. There were no significant ethnic differences in length of stay among patients with informal caregivers.
CONCLUSIONS: Our findings suggest that ethnic differences in length of stay should be discussed in terms of type of caregiver, not just type of setting, since patients in residential facilities can have informal primary caregivers who are vigilant advocates for their dying relatives. We discuss possible reasons for the influence of having formal caregivers on length of stay of minority elders.

Entities:  

Mesh:

Year:  2008        PMID: 18363492      PMCID: PMC2719542          DOI: 10.1089/jpm.2007.0149

Source DB:  PubMed          Journal:  J Palliat Med        ISSN: 1557-7740            Impact factor:   2.947


  24 in total

1.  Gaps in end-of-life care.

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2.  Potential and active family caregivers: changing networks and the "sandwich generation".

Authors:  B C Spillman; L E Pezzin
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3.  Providing care at the end of life: do Medicare rules impede good care?

Authors:  H A Huskamp; M B Buntin; V Wang; J P Newhouse
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4.  Factors associated with length of stay in a mid-sized, urban hospice.

Authors:  M J Somova; P G Somov; J C Lawrence; T T Frantz
Journal:  Am J Hosp Palliat Care       Date:  2000 Mar-Apr       Impact factor: 2.500

5.  Withdrawal of life support: intensive caring at the end of life.

Authors:  Thomas J Prendergast; Kathleen A Puntillo
Journal:  JAMA       Date:  2002-12-04       Impact factor: 56.272

6.  Distribution of African Americans in residential care/assisted living and nursing homes: more evidence of racial disparity?

Authors:  Daniel L Howard; Philip D Sloane; Sheryl Zimmerman; J Kevin Eckert; Joan F Walsh; Verita C Buie; Persephone J Taylor; Gary G Koch
Journal:  Am J Public Health       Date:  2002-08       Impact factor: 9.308

7.  Informal caregiver involvement and illness detection among cognitively impaired nursing home residents.

Authors:  Cynthia Lindman Port
Journal:  J Gerontol A Biol Sci Med Sci       Date:  2006-09       Impact factor: 6.053

8.  Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart, or liver disease. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments.

Authors:  E Fox; K Landrum-McNiff; Z Zhong; N V Dawson; A W Wu; J Lynn
Journal:  JAMA       Date:  1999-11-03       Impact factor: 56.272

9.  Perspectives on care at the close of life. Serving patients who may die soon and their families: the role of hospice and other services.

Authors:  J Lynn
Journal:  JAMA       Date:  2001-02-21       Impact factor: 56.272

10.  Does hospice have a role in nursing home care at the end of life?

Authors:  D J Casarett; K B Hirschman; M R Henry
Journal:  J Am Geriatr Soc       Date:  2001-11       Impact factor: 5.562

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  3 in total

1.  Are Trends in Hospitalization Prior to Hospice Use Associated With Hospice Episode Characteristics?

Authors:  Brystana G Kaufman; Carla A Sueta; Cathy Chen; B Gwen Windham; Sally C Stearns
Journal:  Am J Hosp Palliat Care       Date:  2016-07-14       Impact factor: 2.500

2.  The Utility of a Connecting Framework to Facilitate Understanding of and Reduce the Disparities in Hospice Care Experienced by Racial and Ethnic Minorities.

Authors:  Janice A Chilton; Evaon C Wong-Kim; Jeffrey J Guidry; Beverly J Gor; Lovell A Jones
Journal:  Prim psychiatry       Date:  2008-10-01

3.  'Palliative care': a contradiction in terms? A qualitative study of cancer patients with a Turkish or Moroccan background, their relatives and care providers.

Authors:  Fuusje M de Graaff; Anneke L Francke; Maria Etc van den Muijsenbergh; Sjaak van der Geest
Journal:  BMC Palliat Care       Date:  2010-09-10       Impact factor: 3.234

  3 in total

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