Literature DB >> 18360839

Advocacy and adolescent/young adult cancer survivors.

Devon McGoldrick1, Claire Neal, Myrna Whiteson.   

Abstract

Strong advocacy efforts are vital to ensuring that the unique medical, psychosocial, support and educational needs of teenagers/adolescents and young adults living with cancer are met. Advocacy groups can help bring individuals interested in change together, and provide coordinated education and support services as well as policy analysis and response. Recent improvements in services and treatment indicate the success of organised and professional advocacy in addressing the needs of teenage/adolescent and young adult survivors. The advocacy community can continue to make great advances by joining together to support worldwide recognition of the unique needs of this population, the development of specialist facilities for teenagers/adolescents and young adults, increased awareness of cancer in this population to combat delayed diagnosis and improve access and quality of care, and alleviating the challenges of working with a multidisciplinary health care team. Copyright 2008 Wiley-Liss, Inc.

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Year:  2008        PMID: 18360839     DOI: 10.1002/pbc.21457

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN: 1545-5009            Impact factor:   3.167


  4 in total

1.  Principles and Recommendations for the Provision of Healthcare in Canada to Adolescent and Young Adult-Aged Cancer Patients and Survivors.

Authors:  Conrad Fernandez; Graeme A M Fraser; Carolyn Freeman; Eva Grunfeld; Abha Gupta; Leslie Stephen Mery; Sonja De Pauw; Brent Schacter
Journal:  J Adolesc Young Adult Oncol       Date:  2011-04       Impact factor: 2.223

2.  Kids, adolescents, and young adult cancer study-a methodologic approach in cancer epidemiology research.

Authors:  Nancy J Link; Eva Maurer; Joan Largent; Erin Kent; Rebecca A Morris; Leonard S Sender; Hoda Anton-Culver
Journal:  J Cancer Epidemiol       Date:  2010-02-10

3.  Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP).

Authors:  Tara Clinton-McHarg; Mariko Carey; Rob Sanson-Fisher; Catherine D'Este; Anthony Shakeshaft
Journal:  Health Qual Life Outcomes       Date:  2012-01-30       Impact factor: 3.186

4.  Symptom Interval and Patient Delay Affect Survival Outcomes in Adolescent Cancer Patients.

Authors:  Song Lee Jin; Seung Min Hahn; Hyo Sun Kim; Yoon Jung Shin; Sun Hee Kim; Yoon Sun Lee; Chuhl Joo Lyu; Jung Woo Han
Journal:  Yonsei Med J       Date:  2016-05       Impact factor: 2.759

  4 in total

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