Literature DB >> 18338399

Health-related quality of life in sickle cell disease.

Julie A Panepinto1.   

Abstract

Advances in drug therapy, hematopoietic stem cell transplantation, and technology have improved the morbidity and survival for those with sickle cell disease. The effect of this modern therapy on the health-related quality of life (HRQL) of those with sickle cell disease is not known. HRQL provides an assessment of how an illness, its complications, and its treatment are experienced by a patient. This review will examine prior work in HRQL in sickle cell disease and the rationale for utilizing HRQL as an outcome to measure impact of treatment. In addition, issues to consider when reporting HRQL will be presented. (c) 2008 Wiley-Liss, Inc.

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Year:  2008        PMID： 18338399     DOI： 10.1002/pbc.21557

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN： 1545-5009            Impact factor:   3.167


  13 in total

1.  Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea.

Authors:  Courtney D Thornburg; Agustin Calatroni; Julie A Panepinto
Journal:  J Pediatr Hematol Oncol       Date:  2011-05       Impact factor: 1.289

2.  Health-related quality of life (HRQL) in children with sickle cell disease and thalassemia following hematopoietic stem cell transplant (HSCT).

Authors:  Michael J Kelly; Brian W Pennarola; Angie Mae Rodday; Susan K Parsons
Journal:  Pediatr Blood Cancer       Date:  2011-12-19       Impact factor: 3.167

3.  Health-related quality of life in children and adolescents with sickle cell disease.

Authors:  Juanita Conkin Dale; Cindy J Cochran; Lonnie Roy; Ethel Jernigan; George R Buchanan
Journal:  J Pediatr Health Care       Date:  2010-04-02       Impact factor: 1.812

4.  Health-related quality of life in children with sickle cell anemia: impact of blood transfusion therapy.

Authors:  Lauren M Beverung; John J Strouse; Monica L Hulbert; Kathleen Neville; Robert I Liem; Baba Inusa; Beng Fuh; Allison King; Emily Riehm Meier; James Casella; Michael R DeBaun; Julie A Panepinto
Journal:  Am J Hematol       Date:  2015-02       Impact factor: 10.047

5.  Female Sex is Associated With Poor Health-related Quality of Life in Children at 12 Months Post-Hematopoietic Cell Transplantation.

Authors:  Neel S Bhatt; Ruta Brazauskas; Heather R Tecca; Jenny Vogel; Deborah Mattila; Stephanie J Lee; Mary M Horowitz; J Douglas Rizzo; Bronwen E Shaw
Journal:  J Pediatr Hematol Oncol       Date:  2019-04       Impact factor: 1.289

6.  The effect of parental mental health on proxy reports of health-related quality of life in children with sickle cell disease.

Authors:  Julie A Panepinto; Raymond G Hoffmann; Nicholas M Pajewski
Journal:  Pediatr Blood Cancer       Date:  2010-10       Impact factor: 3.167

7.  Double disadvantage: a case control study on health-related quality of life in children with sickle cell disease.

Authors:  Channa T Hijmans; Karin Fijnvandraat; Jaap Oosterlaan; Harriët Heijboer; Marjolein Peters; Martha A Grootenhuis
Journal:  Health Qual Life Outcomes       Date:  2010-10-26       Impact factor: 3.186

8.  Clinically meaningful interpretation of pediatric health-related quality of life in sickle cell disease.

Authors:  Lauren M Beverung; James W Varni; Julie A Panepinto
Journal:  J Pediatr Hematol Oncol       Date:  2015-03       Impact factor: 1.289

9.  The Effectiveness of self management program on quality of life in patients with sickle cell disease.

Authors:  M Ahmadi; S Jahani; S Poormansouri; A Shariati; H Tabesh
Journal:  Iran J Ped Hematol Oncol       Date:  2015-03-15

10.  Saudi SCD patients' symptoms and quality of life relative to the number of ED visits.

Authors:  Anwar E Ahmed; Ahmed S Alaskar; Donna K McClish; Yosra Z Ali; Mohammed H Aldughither; Ahmad M Al-Suliman; Hafiz M Malhan
Journal:  BMC Emerg Med       Date:  2016-08-20
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