Literature DB >> 18316229

Perceived unmet needs for health care among Parkinson's Society of New Zealand members with Parkinson's disease.

Stephen Buetow1, Lynne S Giddings, Lisa Williams, Shoba Nayar.   

Abstract

UNLABELLED: We surveyed nationwide health needs for Parkinson's disease (PD) among New Zealand Parkinson's Society members with PD.
BACKGROUND: Little literature assesses how people with PD perceive their health needs for this medical condition.
METHOD: Cross-sectional survey of health needs through personal, structured telephone interviews with a random sample of 500 Parkinson's Society members with PD.
RESULTS: Many participants wanted improved access to specialist care but their reported attendance rates suggest provider adherence to guideline recommendations. More general practitioners (GPs) than specialists were said to offer less information than wanted. Getting enough information in usual care was the best predictor (odds ratio 3.44, 95% CI: 1.93-6.13, p=0.000) of seeing a specialist for PD as often as wanted.
CONCLUSIONS: People with PD have an important perspective in assessments of their health needs. GPs require training support in providing patient information about PD. Our study results may apply to Parkinson's Society members in similar health systems.

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Mesh:

Year:  2008        PMID: 18316229     DOI: 10.1016/j.parkreldis.2007.11.011

Source DB:  PubMed          Journal:  Parkinsonism Relat Disord        ISSN: 1353-8020            Impact factor:   4.891


  7 in total

1.  Primary health care providers' knowledge gaps on Parkinson's disease.

Authors:  Megan R Thompson; Ramona F Stone; V Dan Ochs; Irene Litvan
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2.  Medication timing errors for Parkinson's disease: perspectives held by caregivers and people with Parkinson's in new zealand.

Authors:  Stephen Buetow; Jenny Henshaw; Linda Bryant; Deirdre O'Sullivan
Journal:  Parkinsons Dis       Date:  2009-11-05

3.  Capturing patients' experiences to change Parkinson's disease care delivery: a multicenter study.

Authors:  Martijn van der Eijk; Marjan J Faber; Bart Post; Michael S Okun; Peter Schmidt; Marten Munneke; Bastiaan R Bloem
Journal:  J Neurol       Date:  2015-08-21       Impact factor: 4.849

4.  Examining chronic care patient preferences for involvement in health-care decision making: the case of Parkinson's disease patients in a patient-centred clinic.

Authors:  Natalie Zizzo; Emily Bell; Anne-Louise Lafontaine; Eric Racine
Journal:  Health Expect       Date:  2016-09-14       Impact factor: 3.377

5.  Barriers and facilitators of communication about off periods in Parkinson's disease: Qualitative analysis of patient, carepartner, and physician Interviews.

Authors:  Melissa J Armstrong; Tara Rastgardani; Anna R Gagliardi; Connie Marras
Journal:  PLoS One       Date:  2019-04-18       Impact factor: 3.240

Review 6.  A Narrative Review of Specialist Parkinson's Nurses: Evolution, Evidence and Expectation.

Authors:  Emma Tenison; Alice James; Louise Ebenezer; Emily J Henderson
Journal:  Geriatrics (Basel)       Date:  2022-04-07

7.  A qualitative exploration of the healthcare challenges and pharmaceutical care needs of people with Parkinson's and their caregivers.

Authors:  Sabrina Anne Jacob; Zhi Jean Wong; Wing Loong Cheong; Elizabeth Yie-Chuen Chong; Yin Xuan Wong; Sara Lai Heong Lew
Journal:  Int J Clin Pharm       Date:  2021-07-27
  7 in total

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