Literature DB >> 18287181

Understanding the views of parents of children with special needs about the nursing care their child receives when in hospital: a qualitative study.

Mark Avis1, Rachel Reardon.   

Abstract

This article reports a qualitative study designed to explore parents' views on how their child with additional needs had been cared for by hospital nursing staff, focusing on how well their own and their child's needs had been identified and met. Twelve interviews with parents of children with additional needs and a thematic analysis of the interview data was conducted. Four themes were developed to provide an insight into parents' views about their experiences: their prior experiences of hospital care, including the process of being told the original diagnosis; communication with staff; nurse-parent relationships; and perceptions of nurses and nursing care. It concludes that parents experience some difficulties in developing a trusting relationship with the nurses caring for their child with additional needs. Parents perceive that nurses are not always able to recognize and respond to their needs when caring for their child. Failure to address these needs can interfere with the development of effective nurse-parent relationships.

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Year:  2008        PMID: 18287181     DOI: 10.1177/1367493507085615

Source DB:  PubMed          Journal:  J Child Health Care        ISSN: 1367-4935            Impact factor:   1.979


  12 in total

1.  Communicating with disabled children when inpatients: barriers and facilitators identified by parents and professionals in a qualitative study.

Authors:  Siobhan Sharkey; Claire Lloyd; Richard Tomlinson; Eleanor Thomas; Alice Martin; Stuart Logan; Christopher Morris
Journal:  Health Expect       Date:  2014-08-24       Impact factor: 3.377

2.  Child-Parent-Provider Interactions of a Child With Complex Communication Needs in an Inpatient Rehabilitation Facility: A Pilot Study.

Authors:  Jessica Gormley; Janice Light
Journal:  Am J Speech Lang Pathol       Date:  2020-12-14       Impact factor: 2.408

3.  Informing parents about positive newborn screen results: parents' recommendations.

Authors:  Natalie Salm; Elena Yetter; Audrey Tluczek
Journal:  J Child Health Care       Date:  2012-09-14       Impact factor: 1.979

4.  Moving family-centered care forward: Bereaved fathers' perspectives.

Authors:  Betty Davies; Jennifer Baird; Maria Gudmundsdottir
Journal:  J Hosp Palliat Nurs       Date:  2013-05-01       Impact factor: 1.918

5.  A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units.

Authors:  Jos M Latour; Johannes B van Goudoever; Beatrix Elink Schuurman; Marcel J I J Albers; Nicolette A M van Dam; Eugenie Dullaart; Marc van Heerde; Carin W M Verlaat; Elise M van Vught; Jan A Hazelzet
Journal:  Intensive Care Med       Date:  2010-11-10       Impact factor: 17.440

6.  Mapping staff perspectives towards the delivery of hospital care for children and young people with and without learning disabilities in England: a mixed methods national study.

Authors:  Kate Oulton; Faith Gibson; Lucinda Carr; Angela Hassiotis; Carey Jewitt; Charlotte Kenten; Jessica Russell; Mark Whiting; Irene Tuffrey-Wijne; Jo Wray
Journal:  BMC Health Serv Res       Date:  2018-03-23       Impact factor: 2.655

7.  Supporting communication for children with cerebral palsy in hospital: views of community and hospital staff.

Authors:  Bronwyn Hemsley; Sabrena Lee; Kathleen Munro; Nadeera Seedat; Kaely Bastock; Bronwyn Davidson
Journal:  Dev Neurorehabil       Date:  2013-10-08       Impact factor: 2.308

Review 8.  A metasynthesis of patient-provider communication in hospital for patients with severe communication disabilities: informing new translational research.

Authors:  Bronwyn Hemsley; Susan Balandin
Journal:  Augment Altern Commun       Date:  2014-09-17       Impact factor: 2.214

9.  Pay More Attention: a national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families.

Authors:  Kate Oulton; Jo Wray; Lucinda Carr; Angela Hassiotis; Carey Jewitt; Sam Kerry; Irene Tuffrey-Wijne; Faith Gibson
Journal:  BMJ Open       Date:  2016-12-09       Impact factor: 2.692

10.  Improving communication between staff and disabled children in hospital wards: testing the feasibility of a training intervention developed through intervention mapping.

Authors:  Rebecca Gumm; Eleanor Thomas; Claire Lloyd; Helen Hambly; Richard Tomlinson; Stuart Logan; Christopher Morris
Journal:  BMJ Paediatr Open       Date:  2017-09-11
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