OBJECTIVE: Community-based care for mental disorders places considerable burden on families and carers. Measuring their experiences has become a priority, but there is no consensus on appropriate instruments. We aimed to review instruments carers consider relevant to their needs and assess evidence for their use. METHOD: A literature search was conducted for outcome measures used with mental health carers. Identified instruments were assessed for their relevance to the outcomes identified by carers and their psychometric properties. RESULTS: Three hundred and ninety two published articles referring to 241 outcome measures were identified, 64 of which were eligible for review (used in three or more studies). Twenty-six instruments had good psychometric properties; they measured (i) carers' well-being, (ii) the experience of caregiving and (iii) carers' needs for professional support. CONCLUSION: Measures exist which have been used to assess the most salient aspects of carers outcome in mental health. All require further work to establish their psychometric properties fully.
OBJECTIVE: Community-based care for mental disorders places considerable burden on families and carers. Measuring their experiences has become a priority, but there is no consensus on appropriate instruments. We aimed to review instruments carers consider relevant to their needs and assess evidence for their use. METHOD: A literature search was conducted for outcome measures used with mental health carers. Identified instruments were assessed for their relevance to the outcomes identified by carers and their psychometric properties. RESULTS: Three hundred and ninety two published articles referring to 241 outcome measures were identified, 64 of which were eligible for review (used in three or more studies). Twenty-six instruments had good psychometric properties; they measured (i) carers' well-being, (ii) the experience of caregiving and (iii) carers' needs for professional support. CONCLUSION: Measures exist which have been used to assess the most salient aspects of carers outcome in mental health. All require further work to establish their psychometric properties fully.
Authors: Fiona Lobban; Nadia Akers; Duncan Appelbe; Rossella Iraci Capuccinello; Lesley Chapman; Lizzi Collinge; Susanna Dodd; Sue Flowers; Bruce Hollingsworth; Mahsa Honary; Sonia Johnson; Steven H Jones; Ceu Mateus; Barbara Mezes; Elizabeth Murray; Katerina Panagaki; Naomi Rainford; Heather Robinson; Anna Rosala-Hallas; William Sellwood; Andrew Walker; Paula R Williamson Journal: Health Technol Assess Date: 2020-06 Impact factor: 4.014
Authors: Lori Frank; Lee A Jennings; Ronald C Petersen; Tabassum Majid; Andrea Gilmore-Bykovskyi; Lonni Schicker; Jason Karlawish Journal: J Am Geriatr Soc Date: 2021-07 Impact factor: 7.538