Literature DB >> 18200518

Ethical and policy issues in pediatric genetics.

Lainie Friedman Ross1.   

Abstract

This article presents an overview to a special issue on ethical and policy issues in pediatric genetics. It discusses challenges to current practices and policies with regard to newborn screening, biobanking initiatives, and predictive genetic testing of minors. (c) 2008 Wiley-Liss, Inc.

Mesh:

Year:  2008        PMID: 18200518     DOI: 10.1002/ajmg.c.30162

Source DB:  PubMed          Journal:  Am J Med Genet C Semin Med Genet        ISSN: 1552-4868            Impact factor:   3.908


  5 in total

1.  Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers.

Authors:  Kristien Hens; Herman Nys; Jean-Jacques Cassiman; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2009-08       Impact factor: 4.246

Review 2.  Assessing the Fragile X Syndrome Newborn Screening Landscape.

Authors:  Catharine Riley; Anne Wheeler
Journal:  Pediatrics       Date:  2017-06       Impact factor: 7.124

3.  Ethics, genetics and public policies in Uruguay: newborn and infant screening as a paradigm.

Authors:  Mariela Larrandaburu; Ursula Matte; Ana Noble; Zully Olivera; Maria Teresa V Sanseverino; Luis Nacul; Lavinia Schuler-Faccini
Journal:  J Community Genet       Date:  2015-05-29

Review 4.  Ethical aspects of human biobanks: a systematic review.

Authors:  Danijela Budimir; Ozren Polasek; Ana Marusić; Ivana Kolcić; Tatijana Zemunik; Vesna Boraska; Ana Jeroncić; Mladen Boban; Harry Campbell; Igor Rudan
Journal:  Croat Med J       Date:  2011-06       Impact factor: 1.351

5.  The Moral Foundations of Child Health and Social Policies: A Critical Interpretive Synthesis.

Authors:  Avram E Denburg; Mita Giacomini; Wendy J Ungar; Julia Abelson
Journal:  Children (Basel)       Date:  2021-01-13
  5 in total

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