Literature DB >> 18187596

A multidisciplinary model of care for childhood cancer survivors with complex medical needs.

Claire A Carlson1, Wendy L Hobbie, Melinda Brogna, Jill P Ginsberg.   

Abstract

Long-term survival for children with cancer is often achieved at a considerable cost in terms of medical and psychological sequelae. Although many survivors are well and require only routine follow-up and surveillance, a cohort of survivors require comprehensive management of complex, chronic medical issues by multiple subspecialists. For these survivors, care delivered within the context of an annual visit to a traditional hospital-based late effects clinic or by a primary care physician in the community is often not adequate. A specialized clinic was implemented at The Children's Hospital of Philadelphia that crosses disciplines and provides same-day, same-clinic access to oncology/survivorship, endocrinology, pulmonology, cardiology, nutrition, and psychology. This multidisciplinary approach supports clinical efficiency and fosters seamless patient-centered care both for patients with identified late effects and for those with the highest risk for problems because of intense treatment exposures. The model is described with a focus on clinic structure/process, clinical outcomes, and benefits to survivor, health care provider, and institution. The diverse roles for nursing within this model are highlighted.

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Year:  2008        PMID: 18187596     DOI: 10.1177/1043454207311741

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  9 in total

1.  Multidisciplinary care in the oncology setting: historical perspective and data from lung and gynecology multidisciplinary clinics.

Authors:  Laura Elise Horvath; Edgardo Yordan; Deepak Malhotra; Ileana Leyva; Katy Bortel; Denise Schalk; Patricia Mellinger; Marianne Huml; Christy Kesslering; Jeffrey Huml
Journal:  J Oncol Pract       Date:  2010-11       Impact factor: 3.840

Review 2.  Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: a report from the PanCareSurFup Guidelines Working Group.

Authors:  Gisela Michel; Renée L Mulder; Helena J H van der Pal; Roderick Skinner; Edit Bárdi; Morven C Brown; Janine Vetsch; Eva Frey; Rachael Windsor; Leontien C M Kremer; Gill Levitt
Journal:  J Cancer Surviv       Date:  2019-08-08       Impact factor: 4.442

3.  Late effects in survivors of tandem peripheral blood stem cell transplant for high-risk neuroblastoma.

Authors:  Wendy L Hobbie; Thomas Moshang; Claire A Carlson; Elizabeth Goldmuntz; Nancy Sacks; Samuel B Goldfarb; Stephan A Grupp; Jill P Ginsberg
Journal:  Pediatr Blood Cancer       Date:  2008-11       Impact factor: 3.167

4.  Adolescent and Young Adult Survivors of Childhood Brain Tumors: Life After Treatment in Their Own Words.

Authors:  Wendy L Hobbie; Sue Ogle; Maureen Reilly; Lamia Barakat; Matthew S Lucas; Jill P Ginsberg; Michael J Fisher; Ellen M Volpe; Janet A Deatrick
Journal:  Cancer Nurs       Date:  2016 Mar-Apr       Impact factor: 2.592

5.  Multidisciplinary care in pediatric oncology.

Authors:  Mary Ann Cantrell; Kathy Ruble
Journal:  J Multidiscip Healthc       Date:  2011-05-30

6.  Incorporating genetic counseling into clinical care for children and adolescents with cancer.

Authors:  Jessica N Everett; Rajen J Mody; Elena M Stoffel; Arul M Chinnaiyan
Journal:  Future Oncol       Date:  2016-02-18       Impact factor: 3.404

7.  Survivor and parent engagement in childhood cancer treatment in Iran.

Authors:  Shirin Ahmadnia; Atena Kamel Ghalibaf; Saba Kamkar; Zahra Mohamadzadeh; Mithra Ghalibafian
Journal:  Ecancermedicalscience       Date:  2021-04-19

8.  Impact of a Genetic Evaluation Initiative to Increase Access to Genetic Services for Adolescent and Young Adults at a Tertiary Cancer Hospital.

Authors:  Sukh Makhnoon; Jessica Corredor; Banu Arun; Donna Bell; Angela Yarbrough; John Andrew Livingston; Susan K Peterson; Michael Roth
Journal:  J Adolesc Young Adult Oncol       Date:  2020-08-19       Impact factor: 1.757

9.  Impact of Tailored Education on Awareness of Personal Risk for Therapy-Related Complications Among Childhood Cancer Survivors.

Authors:  Wendy Landier; Yanjun Chen; Golnaz Namdar; Liton Francisco; Karla Wilson; Claudia Herrera; Saro Armenian; Julie A Wolfson; Can-Lan Sun; F Lennie Wong; Smita Bhatia
Journal:  J Clin Oncol       Date:  2015-08-31       Impact factor: 44.544

  9 in total

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