Literature DB >> 18177468

Cultural enhancement of a clinical service to meet the needs of indigenous people; genetic service development in response to issues for New Zealand Maori.

R V Port1, J Arnold, D Kerr, N Glavish, N Gravish, I Winship.   

Abstract

The delivery of good health care services within clinical settings is predicated by an understanding of the needs of the stakeholders. Most of the information generated to date on the transfer of mutational analysis to clinical service has been within a Eurocentric model favouring individual autonomy. It is predictable that this model does not easily translate for other cultures. Current genetic technology has elucidated the molecular basis of many diseases. In familial cancer and other late-onset disorders, there is now the possibility of 'prediction' where a high risk conferred by family history can be confirmed or negated by genetic testing. In paediatric disorders, prediction is offered in the form of prenatal or pre-implantation genetic diagnosis. We report on the processes undertaken in an attempt to provide a culturally sensitive service for the Maori people of Aotearoa, New Zealand.

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Year:  2007        PMID: 18177468     DOI: 10.1111/j.1399-0004.2007.00943.x

Source DB:  PubMed          Journal:  Clin Genet        ISSN: 0009-9163            Impact factor:   4.438


  11 in total

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3.  Genetic Counseling for Indigenous Australians: an Exploratory Study from the Perspective of Genetic Health Professionals.

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Journal:  J Genet Couns       Date:  2014-10-28       Impact factor: 2.537

4.  Etiology of Obesity Over the Life Span: Ecologic and Genetic Highlights from New Zealand Cohorts.

Authors:  S D Poppitt; M P Silvestre; A Liu
Journal:  Curr Obes Rep       Date:  2014-03

5.  Genetic research and aboriginal and Torres Strait Islander Australians.

Authors:  Emma Kowal; Glenn Pearson; Lobna Rouhani; Chris S Peacock; Sarra E Jamieson; Jenefer M Blackwell
Journal:  J Bioeth Inq       Date:  2012-10-12       Impact factor: 1.352

6.  What hinders minority ethnic access to cancer genetics services and what may help?

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Journal:  Eur J Hum Genet       Date:  2013-11-20       Impact factor: 4.246

7.  Uncovering social structures and informational prejudices to reduce inequity in delivery and uptake of new molecular technologies.

Authors:  Sara Filoche; Peter Stone; Fiona Cram; Sondra Bacharach; Anthony Dowell; Dianne Sika-Paotonu; Angela Beard; Judy Ormandy; Christina Buchanan; Michelle Thunders; Kevin Dew
Journal:  J Med Ethics       Date:  2020-01-07       Impact factor: 2.903

8.  Neuroethics, confidentiality, and a cultural imperative in early onset Alzheimer disease: a case study with a First Nation population.

Authors:  Shaun Stevenson; B Lynn Beattie; Richard Vedan; Emily Dwosh; Lindsey Bruce; Judy Illes
Journal:  Philos Ethics Humanit Med       Date:  2013-10-16       Impact factor: 2.464

9.  Identifying and Addressing Genetic Counseling Challenges among Indigenous People of Oaxaca-One Center's Experience with Two Immigrant Farmworker Families in the Central Valley of California.

Authors:  Joseph J Shen; Jason Carmichael; Leoncio Vásquez Santos
Journal:  J Genet Couns       Date:  2018-02-03       Impact factor: 2.537

10.  Implementing non-invasive prenatal testing into publicly funded antenatal screening services for Down syndrome and other conditions in Aotearoa New Zealand.

Authors:  Sara Filoche; Fiona Cram; Bev Lawton; Angela Beard; Peter Stone
Journal:  BMC Pregnancy Childbirth       Date:  2017-10-04       Impact factor: 3.007

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