Literature DB >> 18086460

The Seizures and Epilepsy Education (SEE) program for families of children with epilepsy: a preliminary study.

Cheryl P Shore1, Susan M Perkins, Joan K Austin.   

Abstract

We investigated the usefulness of the Seizures and Epilepsy Education (SEE) program in improving quality of life, management of the seizure condition, and health care utilization in families having a child with epilepsy. Members of 15 families attended the program, with at least one parent from each family represented. Children attended if they were at least 12 years of age. Participants completed research instruments prior to attending the SEE program, and also 1 and 6 months after attendance. Both parents and children reported improvement in quality of life relating to child mental health after attending the SEE program. Parents reported reduced emotional impact of the child's condition, fewer worries, and greater knowledge related to epilepsy. Results suggest that attending the SEE program may be beneficial to families having a child with epilepsy; however, further study is needed with a more robust research design.

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Year:  2008        PMID: 18086460     DOI: 10.1016/j.yebeh.2007.10.001

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  8 in total

Review 1.  Care delivery and self-management strategies for children with epilepsy.

Authors:  Nigel Fleeman; Peter M Bradley; Mariangela Panebianco; Anika Sharma
Journal:  Cochrane Database Syst Rev       Date:  2022-04-27

2.  Health-related quality of life improvement via telemedicine for epilepsy: printed versus SMS-based education intervention.

Authors:  Pei Lin Lua; Widiasmoro Selamat Neni
Journal:  Qual Life Res       Date:  2013-01-18       Impact factor: 4.147

3.  Language and social functioning in children and adolescents with epilepsy.

Authors:  Anna W Byars; Ton J deGrauw; Cynthia S Johnson; Susan M Perkins; Philip S Fastenau; David W Dunn; Joan K Austin
Journal:  Epilepsy Behav       Date:  2014-01-14       Impact factor: 2.937

4.  Continuing psychosocial care needs in children with new-onset epilepsy and their parents.

Authors:  Cheryl P Shore; Janice M Buelow; Joan K Austin; Cynthia S Johnson
Journal:  J Neurosci Nurs       Date:  2009-10       Impact factor: 1.230

Review 5.  Knowledge and information needs of young people with epilepsy and their parents: Mixed-method systematic review.

Authors:  Sheila A Lewis; Jane Noyes; Stephen Mackereth
Journal:  BMC Pediatr       Date:  2010-12-31       Impact factor: 2.125

Review 6.  Care delivery and self-management strategies for children with epilepsy.

Authors:  Nigel Fleeman; Peter M Bradley
Journal:  Cochrane Database Syst Rev       Date:  2018-03-01

7.  An Analysis of a Novel, Short-Term Therapeutic Psychoeducational Program for Children and Adolescents with Chronic Neurological Illness and Their Parents; Feasibility and Efficacy.

Authors:  Bonglim Joo; Young-Mock Lee; Heung Dong Kim; Soyong Eom
Journal:  Front Neurosci       Date:  2017-05-31       Impact factor: 4.677

8.  Efficacy of an interventional educational programme in mitigating post-traumatic stress in parents who have witnessed a febrile seizure: a pilot before-and-after study.

Authors:  Flora Frascari; Isabelle Dreyfus; Yves Chaix; Camille Tison-Chambellan
Journal:  BMJ Paediatr Open       Date:  2017-12-12
  8 in total

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