AIM: To describe the parental view of the cognitive skills of their child with a surgically corrected congenital heart disease (CHD) and compare it to objectified cognitive measures in children with CHD 6-12 years postoperatively. METHODS: Parents completed a questionnaire on several cognitive functions of their child. Children with CHD and healthy controls (n=86, aged 8 years 8 months +/- 1 year 6 months) underwent an abbreviated IQ-testing and a neurodevelopmental assessment. RESULTS: Parents of the children with CHD more frequently indicated lower sustained attention (p<0.05), lower divided attention (p<0.001), more problems with memory and learning skills (p<0.05), and deficient gross motor functioning (p<0.01) compared to the parents of healthy controls. Intellectual and neuropsychological assessment revealed a lower estimated full-scale IQ (p<0.01), worse sensorimotor functioning (p<0.001), and lower performances on language (p<0.001), attention/executive functioning (p<0.05), and memory (p<0.05) in the CHD-group. Several items of the questionnaire were significant predictors for worse neurodevelopmental outcome. CONCLUSION: Overall, the objective and subjective measures on cognitive functioning are in agreement and indicate the presence of neurocognitive deficits in children with CHD. This study endorses the accuracy and usefulness of a parental questionnaire to report on the cognitive functioning of the child and urges the investigation of neurocognitive functioning in children with CHD at follow-up.
AIM: To describe the parental view of the cognitive skills of their child with a surgically corrected congenital heart disease (CHD) and compare it to objectified cognitive measures in children with CHD 6-12 years postoperatively. METHODS: Parents completed a questionnaire on several cognitive functions of their child. Children with CHD and healthy controls (n=86, aged 8 years 8 months +/- 1 year 6 months) underwent an abbreviated IQ-testing and a neurodevelopmental assessment. RESULTS: Parents of the children with CHD more frequently indicated lower sustained attention (p<0.05), lower divided attention (p<0.001), more problems with memory and learning skills (p<0.05), and deficient gross motor functioning (p<0.01) compared to the parents of healthy controls. Intellectual and neuropsychological assessment revealed a lower estimated full-scale IQ (p<0.01), worse sensorimotor functioning (p<0.001), and lower performances on language (p<0.001), attention/executive functioning (p<0.05), and memory (p<0.05) in the CHD-group. Several items of the questionnaire were significant predictors for worse neurodevelopmental outcome. CONCLUSION: Overall, the objective and subjective measures on cognitive functioning are in agreement and indicate the presence of neurocognitive deficits in children with CHD. This study endorses the accuracy and usefulness of a parental questionnaire to report on the cognitive functioning of the child and urges the investigation of neurocognitive functioning in children with CHD at follow-up.