Literature DB >> 18021523

Disease-specific quality indicators, guidelines and outcome measures in scleroderma.

G Valentini1, M Matucci Cerinic.   

Abstract

The assessment of the patient with systemic sclerosis remains a challenge for the clinical investigator and the clinician. The measures used to assess the impact of the disease on the quality of life and the outcome measures for both clinical practice and clinical research, including therapeutic trials, are presented and discussed, with emphasis on present limitations.

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Mesh：

Year:  2007        PMID： 18021523

Source DB:  PubMed          Journal:  Clin Exp Rheumatol        ISSN： 0392-856X            Impact factor:   4.473


  11 in total

1.  Cell-free DNA in the plasma of patients with systemic sclerosis.

Authors:  Marta Mosca; Tiziana Giuliano; Giovanna Cuomo; Marica Doveri; Chiara Tani; Michele Curcio; Giuseppina Abignano; Francesca De Feo; Laura Bazzichi; Alessandra Della Rossa; Gabriele Valentini; Stefano Bombardieri
Journal:  Clin Rheumatol       Date:  2009-08-11       Impact factor: 2.980

2.  Independent replication and meta analysis of association studies establish TNFSF4 as a susceptibility gene preferentially associated with the subset of anticentromere-positive patients with systemic sclerosis.

Authors:  Baptiste Coustet; Matthieu Bouaziz; Philippe Dieudé; Mickael Guedj; Lara Bossini-Castillo; Sandeep Agarwal; Timothy Radstake; Javier Martin; Pravitt Gourh; Muriel Elhai; Eugénie Koumakis; Jérôme Avouac; Barbara Ruiz; Maureen Mayes; Frank Arnett; Eric Hachulla; Elisabeth Diot; Jean-Luc Cracowski; Kiet Tiev; Jean Sibilia; Luc Mouthon; Camille Frances; Zahir Amoura; Patrick Carpentier; Anne Cosnes; Olivier Meyer; André Kahan; Catherine Boileau; Gilles Chiocchia; Yannick Allanore
Journal:  J Rheumatol       Date:  2012-03-15       Impact factor: 4.666

3.  Association study of ITGAM, ITGAX, and CD58 autoimmune risk loci in systemic sclerosis: results from 2 large European Caucasian cohorts.

Authors:  Baptiste Coustet; Sandeep K Agarwal; Pravitt Gourh; Mickael Guedj; Maureen D Mayes; Philippe Dieude; Julien Wipff; Jerome Avouac; Eric Hachulla; Elisabeth Diot; Jean Luc Cracowski; Kiet Tiev; Jean Sibilia; Luc Mouthon; Camille Frances; Zahir Amoura; Patrick Carpentier; Olivier Meyer; Andre Kahan; Catherine Boileau; Frank C Arnett; Yannick Allanore
Journal:  J Rheumatol       Date:  2011-03-01       Impact factor: 4.666

Review 4.  Why, how, and when to use color Doppler ultrasound for improving precision in the diagnosis, assessment of severity and activity in morphea.

Authors:  Ximena Wortsman
Journal:  J Scleroderma Relat Disord       Date:  2018-09-24

5.  What is the relationship between disease activity, severity and damage in a large Canadian systemic sclerosis cohort? Results from the Canadian Scleroderma Research Group (CSRG).

Authors:  Xiangning Fan; Janet Pope; Murray Baron
Journal:  Rheumatol Int       Date:  2009-09-24       Impact factor: 2.631

6.  Association study of CRP gene in systemic sclerosis in European Caucasian population.

Authors:  Julien Wipff; Philippe Dieudé; Jérôme Avouac; Eric Hachulla; Jean-Luc Cracowski; Elisabeth Diot; Luc Mouthon; Jean Sibilia; Kiet Tiev; Olivier Meyer; André Kahan; Catherine Boileau; Yannick Allanore
Journal:  Rheumatol Int       Date:  2013-02-09       Impact factor: 2.631

7.  Skin autofluorescence, as marker of accumulation of advanced glycation endproducts and of cumulative metabolic stress, is not increased in patients with systemic sclerosis.

Authors:  M E Hettema; H Bootsma; R Graaff; R de Vries; C G M Kallenberg; A J Smit
Journal:  Int J Rheumatol       Date:  2011-09-29

8.  How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?

Authors:  Julia Spierings; Cornelia H M van den Ende; Rita M Schriemer; Hein J Bernelot Moens; Egon A van der Bijl; Femke Bonte-Mineur; Marieke P D de Buck; Meeke A E de Kanter; Hanneke K A Knaapen-Hans; Jacob M van Laar; Udo D J Mulder; Judith Potjewijd; Lian A J de Pundert; Thea H M Schoonbrood; Anne A Schouffoer; Alja J Stel; Ward Vercoutere; Alexandre E Voskuyl; Jeska K de Vries-Bouwstra; Madelon C Vonk
Journal:  Rheumatology (Oxford)       Date:  2020-06-01       Impact factor: 7.580

9.  Decreased Serum Levels of SIRT1 and SIRT3 Correlate with Severity of Skin and Lung Fibrosis and Peripheral Microvasculopathy in Systemic Sclerosis.

Authors:  Mirko Manetti; Irene Rosa; Bianca Saveria Fioretto; Marco Matucci-Cerinic; Eloisa Romano
Journal:  J Clin Med       Date:  2022-03-01       Impact factor: 4.241

10.  Quality of life as measured by the short-form 36 (SF-36) questionnaire in patients with early systemic sclerosis and undifferentiated connective tissue disease.

Authors:  Michele Iudici; Giovanna Cuomo; Serena Vettori; Manuela Avellino; Gabriele Valentini
Journal:  Health Qual Life Outcomes       Date:  2013-02-25       Impact factor: 3.186
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