Literature DB >> 17931738

Making policy decisions about population screening for breast cancer: the role of citizens' deliberation.

Charlotte Paul1, Rachel Nicholls, Patricia Priest, Rob McGee.   

Abstract

OBJECTIVE: To test a method of assessing whether a community of interest - when well informed - would be prepared to support or reject a public policy decision about cancer screening. In particular, whether the New Zealand government should offer free mammography screening to all women aged 40-49 years.
METHODS: Eleven women aged from 40 to 49 years, randomly selected from the electoral roll, agreed to participate in trial of a citizens' jury: a deliberative method of gathering the views of the public. Only selected aspects of the jury method were trialled. Participants met over a day and a half to hear evidence from expert witnesses with differing views and to deliberate the verdict.
RESULTS: All but one woman changed their minds during the jury process, and voted against government provision of mammography screening in this age group. The main reasons reported were the inaccuracy of the test and the potential for harm, and the lack of firm evidence of saving lives in this age group.
CONCLUSIONS: A deliberative 'citizens' jury' approach is a feasible way of eliciting a well informed, considered community view about screening or other population health initiatives. Pro-screening views of affected populations may change when individuals are given accurate information and enabled to deliberate about benefits and harms. This method could be used to determine how complex benefits and harms are weighed by affected populations, particularly where experts and advocacy groups disagree.

Entities:  

Mesh:

Year:  2007        PMID: 17931738     DOI: 10.1016/j.healthpol.2007.08.007

Source DB:  PubMed          Journal:  Health Policy        ISSN: 0168-8510            Impact factor:   2.980


  20 in total

1.  Assessing the quality of democratic deliberation: a case study of public deliberation on the ethics of surrogate consent for research.

Authors:  Raymond De Vries; Aimee Stanczyk; Ian F Wall; Rebecca Uhlmann; Laura J Damschroder; Scott Y Kim
Journal:  Soc Sci Med       Date:  2010-03-16       Impact factor: 4.634

2.  Recommendations on screening for breast cancer in women aged 40-74 years who are not at increased risk for breast cancer.

Authors:  Scott Klarenbach; Nicki Sims-Jones; Gabriela Lewin; Harminder Singh; Guylène Thériault; Marcello Tonelli; Marion Doull; Susan Courage; Alejandra Jaramillo Garcia; Brett D Thombs
Journal:  CMAJ       Date:  2018-12-10       Impact factor: 8.262

3.  Harnessing the potential to quantify public preferences for healthcare priorities through citizens' juries.

Authors:  Jennifer A Whitty; Paul Burton; Elizabeth Kendall; Julie Ratcliffe; Andrew Wilson; Peter Littlejohns; Paul A Scuffham
Journal:  Int J Health Policy Manag       Date:  2014-06-16

4.  Effect of Public Deliberation on Patient Attitudes Regarding Consent and Data Use in a Learning Health Care System for Oncology.

Authors:  Reshma Jagsi; Kent A Griffith; Rochelle D Jones; Chris Krenz; Michele Gornick; Rebecca Spence; Raymond De Vries; Sarah T Hawley; Robin Zon; Sage Bolte; Navid Sadeghi; Richard L Schilsky; Angela R Bradbury
Journal:  J Clin Oncol       Date:  2019-10-02       Impact factor: 44.544

5.  Using Democratic Deliberation to Engage Veterans in Complex Policy Making for the Veterans Health Administration.

Authors:  Tanner J Caverly; Claire H Robinson; Sarah L Krein; Jane Forman; Martha Quinn; Sarah E Skurla; Laura Damschroder
Journal:  Fed Pract       Date:  2020-01

6.  Including the public in pandemic planning: a deliberative approach.

Authors:  Annette J Braunack-Mayer; Jackie M Street; Wendy A Rogers; Rodney Givney; John R Moss; Janet E Hiller
Journal:  BMC Public Health       Date:  2010-08-19       Impact factor: 3.295

7.  Valuing Healthcare Improvement: Implicit Norms, Explicit Normativity, and Human Agency.

Authors:  Stacy M Carter
Journal:  Health Care Anal       Date:  2018-06

8.  Assessing the public's views in research ethics controversies: deliberative democracy and bioethics as natural allies.

Authors:  Scott Y H Kim; Ian F Wall; Aimee Stanczyk; Raymond De Vries
Journal:  J Empir Res Hum Res Ethics       Date:  2009-12       Impact factor: 1.742

9.  A Community Jury on PSA screening: what do well-informed men want the government to do about prostate cancer screening--a qualitative analysis.

Authors:  Lucie Rychetnik; Jenny Doust; Rae Thomas; Robert Gardiner; Geraldine Mackenzie; Paul Glasziou
Journal:  BMJ Open       Date:  2014-04-30       Impact factor: 2.692

10.  Women's views on overdiagnosis in breast cancer screening: a qualitative study.

Authors:  Jolyn Hersch; Jesse Jansen; Alexandra Barratt; Les Irwig; Nehmat Houssami; Kirsten Howard; Haryana Dhillon; Kirsten McCaffery
Journal:  BMJ       Date:  2013-01-23
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