Literature DB >> 17908004

Disclosure of genetic information to at-risk relatives: recent amendments to the Privacy Act 1988 (Cwlth).

Margaret F A Otlowski1.   

Abstract

The federal Privacy Act 1988 (Cwlth) has recently been amended to permit the disclosure of genetic information to an at-risk relative when there is a serious (although not necessarily imminent) threat to that person's life, health, or safety. This represents a significant exception to the statutory obligations to maintain the privacy of a patient's health information. However, its scope of operation is limited in that it applies only to doctors and other health professionals working in the private sector, and does not cover those working in State public hospitals or for Commonwealth Government agencies.

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Year:  2007        PMID: 17908004     DOI: 10.5694/j.1326-5377.2007.tb01311.x

Source DB:  PubMed          Journal:  Med J Aust        ISSN: 0025-729X            Impact factor:   7.738


  3 in total

1.  An exploration of the communication preferences regarding genetic testing in individuals from families with identified breast/ovarian cancer mutations.

Authors:  Paboda Ratnayake; Claire E Wakefield; Bettina Meiser; Graeme Suthers; Melanie A Price; Jessica Duffy; Kathy Tucker
Journal:  Fam Cancer       Date:  2011-03       Impact factor: 2.375

Review 2.  A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases.

Authors:  Jane S Paulsen; Martha Nance; Ji-In Kim; Noelle E Carlozzi; Peter K Panegyres; Cheryl Erwin; Anita Goh; Elizabeth McCusker; Janet K Williams
Journal:  Prog Neurobiol       Date:  2013-09-11       Impact factor: 11.685

3.  Research ethics recommendations for whole-genome research: consensus statement.

Authors:  Timothy Caulfield; Amy L McGuire; Mildred Cho; Janet A Buchanan; Michael M Burgess; Ursula Danilczyk; Christina M Diaz; Kelly Fryer-Edwards; Shane K Green; Marc A Hodosh; Eric T Juengst; Jane Kaye; Laurence Kedes; Bartha Maria Knoppers; Trudo Lemmens; Eric M Meslin; Juli Murphy; Robert L Nussbaum; Margaret Otlowski; Daryl Pullman; Peter N Ray; Jeremy Sugarman; Michael Timmons
Journal:  PLoS Biol       Date:  2008-03-25       Impact factor: 8.029

  3 in total

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