OBJECTIVE: To describe current provision of specialist palliative care for chronic heart failure (CHF) patients, and explore challenges, referral criteria and recommendations to inform service development. METHOD: Semi-structured qualitative telephone survey of key professionals involved in CHF palliative care in the UK. RESULTS: Twenty telephone interviews were conducted with staff from 17 services comprising three main types: hospital-based (n = 7), community-based (n = 6) and hospice-based (n = 4). The main recommendations made were to establish mechanisms for joint working between palliative care and cardiology; to ensure that stakeholders are involved from the outset of service planning; and to involve community heart failure nurses in service provision. Referral guidelines were collected from four services, covering diagnostic, symptomatological, psychosocial and team-related criteria. CONCLUSIONS: Information regarding existing services' challenges, recommendations and referral systems is essential when designing a new service, maximising feasibility and acceptability. This study design is of particular value when descriptions and evaluations of service models are lacking in the literature. The survey gives much-needed depth and detail to the types of services currently providing palliative care to CHF patients across the UK.
OBJECTIVE: To describe current provision of specialist palliative care for chronic heart failure (CHF) patients, and explore challenges, referral criteria and recommendations to inform service development. METHOD: Semi-structured qualitative telephone survey of key professionals involved in CHF palliative care in the UK. RESULTS: Twenty telephone interviews were conducted with staff from 17 services comprising three main types: hospital-based (n = 7), community-based (n = 6) and hospice-based (n = 4). The main recommendations made were to establish mechanisms for joint working between palliative care and cardiology; to ensure that stakeholders are involved from the outset of service planning; and to involve community heart failure nurses in service provision. Referral guidelines were collected from four services, covering diagnostic, symptomatological, psychosocial and team-related criteria. CONCLUSIONS: Information regarding existing services' challenges, recommendations and referral systems is essential when designing a new service, maximising feasibility and acceptability. This study design is of particular value when descriptions and evaluations of service models are lacking in the literature. The survey gives much-needed depth and detail to the types of services currently providing palliative care to CHFpatients across the UK.
Authors: Alexander M Clark; Tiny Jaarsma; Patricia Strachan; Patricia M Davidson; Megan Jerke; James M Beattie; Amanda S Duncan; Chantal F Ski; David R Thompson Journal: Nat Rev Cardiol Date: 2011-07-26 Impact factor: 32.419
Authors: David B Bekelman; Carolyn T Nowels; Jessica H Retrum; Larry A Allen; Simon Shakar; Evelyn Hutt; Theresa Heyborne; Deborah S Main; Jean S Kutner Journal: J Palliat Med Date: 2011-11-22 Impact factor: 2.947
Authors: Yuchieh Kathryn Chang; Holland Kaplan; Yimin Geng; Li Mo; Jennifer Philip; Anna Collins; Larry A Allen; John A McClung; Martin A Denvir; David Hui Journal: Circ Heart Fail Date: 2020-09-09 Impact factor: 8.790
Authors: Margaret Glogowska; Rosemary Simmonds; Sarah McLachlan; Helen Cramer; Tom Sanders; Rachel Johnson; Umesh T Kadam; Daniel S Lasserson; Sarah Purdy Journal: BMC Palliat Care Date: 2016-01-14 Impact factor: 3.234