Literature DB >> 17899216

Living with cancer and perception of care: Icelandic oncology outpatients, a qualitative study.

Elísabet Hjörleifsdóttir1, Ingalill Rahm Hallberg, Elín Díanna Gunnarsdóttir, Ingrid Agren Bolmsjö.   

Abstract

AIM: This qualitative study was set out to explore oncology outpatient experiences of having cancer, to illuminate coping strategies and to explore perceptions of care and service provided while treated for cancer.
MATERIALS AND METHODS: Thirty patients undergoing chemotherapy or radiotherapy were consecutively selected for the study in three oncology outpatient clinics in Iceland; mean age was 55 years. All participants gave written consent but five dropped out of the study. Twenty-five semi-structured single interviews were conducted and analysed using manifest and latent content analysis.
RESULTS: The descriptive level of the text could be understood as: (a) getting cancer: alarming experience; (b) coping: balancing life as it was before cancer against present situation to achieve normality; (c) satisfaction: encountering caring behaviour enhances satisfaction and well being. Each of the categories encompassed variation of subcategories. All the categories were summarised in the core category: "Being in the alarming situation of getting cancer evokes a strong need to maintain normality and keep uncertainty at distance with support from caring and sensitive encounters." This reflected patients' overall experiences of being diagnosed with cancer, how they coped and their perception of quality of care while going through treatment.
CONCLUSION: Reactions to the diagnosis of cancer indicate strong emotional reactions. A strong will to handle the situation and determination to maintain normality in life was prominent. Establishment of positive patient-health care professional relationships, caring encounters, faith, believing in treatment and support from family was highly valued as support and giving hope.

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Year:  2007        PMID: 17899216     DOI: 10.1007/s00520-007-0333-9

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  37 in total

1.  The meaning of the lived experience of hope in patients with cancer in palliative home care.

Authors:  E Benzein; A Norberg; B I Saveman
Journal:  Palliat Med       Date:  2001-03       Impact factor: 4.762

2.  Spiritual coping mechanisms in chronic illness: a qualitative study.

Authors:  Aru Narayanasamy
Journal:  J Clin Nurs       Date:  2004-01       Impact factor: 3.036

3.  A qualitative analysis of interviews of men with early stage prostate cancer: the Prostate Cancer Lifestyle Trial.

Authors:  Carol Kronenwetter; Gerdi Weidner; Elaine Pettengill; Ruth Marlin; Lila Crutchfield; Patricia McCormac; Caren J Raisin; Dean Ornish
Journal:  Cancer Nurs       Date:  2005 Mar-Apr       Impact factor: 2.592

4.  Hope and related variables in Italian cancer patients.

Authors:  Ercole Vellone; Maria Luisa Rega; Caterina Galletti; Marlene Z Cohen
Journal:  Cancer Nurs       Date:  2006 Sep-Oct       Impact factor: 2.592

5.  Distress and coping in cancer patients: feasibility of the Icelandic version of BSI 18 and the WOC-CA questionnaires.

Authors:  E Hjörleifsdóttir; I R Hallberg; I A Bolmsjö; E D Gunnarsdóttir
Journal:  Eur J Cancer Care (Engl)       Date:  2006-03       Impact factor: 2.520

6.  Responses to advanced cancer: Chinese-Australians.

Authors:  Ying-Yu Chui; Judith Donoghue; Lynn Chenoweth
Journal:  J Adv Nurs       Date:  2005-12       Impact factor: 3.187

7.  Cancer patients' satisfaction with communication, information and quality of care in a UK region.

Authors:  R Davidson; M E Mills
Journal:  Eur J Cancer Care (Engl)       Date:  2005-03       Impact factor: 2.520

8.  Explaining quality of life with crisis theory.

Authors:  Mirjam A G Sprangers; Reike Tempelaar; Wim J A van den Heuvel; Hanneke C J M de Haes
Journal:  Psychooncology       Date:  2002 Sep-Oct       Impact factor: 3.894

9.  How do cancer patients who try to take control of their disease differ from those who do not?

Authors:  L B Link; L Robbins; C A Mancuso; M E Charlson
Journal:  Eur J Cancer Care (Engl)       Date:  2004-07       Impact factor: 2.520

10.  Symptom distresses and coping strategies in patients with non-small cell lung cancer.

Authors:  Ting-Ting Kuo; Fung-Chi Ma
Journal:  Cancer Nurs       Date:  2002-08       Impact factor: 2.592

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  4 in total

1.  The Patient-Healthcare Professional Relationship and Communication in the Oncology Outpatient Setting: A Systematic Review.

Authors:  Anne Prip; Kirsten Alling Møller; Dorte Lisbet Nielsen; Mary Jarden; Marie-Helene Olsen; Anne Kjaergaard Danielsen
Journal:  Cancer Nurs       Date:  2018 Sep/Oct       Impact factor: 2.592

2.  Experiences of cancer rehabilitation among patients in rural areas in northern Iceland: physical and psychosocial well-being, coping, quality of life, and satisfaction with care. A qualitative study.

Authors:  Eygló Brynja Björnsdóttir; Elísabet Hjörleifsdóttir; Þórhalla Sigurðardóttir; Giorgio Baruchello; Finnbogi Rútur Þormóðsson
Journal:  Int J Circumpolar Health       Date:  2021-12       Impact factor: 1.228

Review 3.  Patient experience studies in the circumpolar region: a scoping review.

Authors:  Christine Ingemann; Nathaniel Fox Hansen; Nanna Lund Hansen; Kennedy Jensen; Christina Viskum Lytken Larsen; Susan Chatwood
Journal:  BMJ Open       Date:  2020-10-05       Impact factor: 2.692

Review 4.  Stakeholder Perceptions of Key Aspects of High-Quality Cancer Care to Assess with Patient Reported Outcome Measures: A Systematic Review.

Authors:  Angela M Stover; Rachel Kurtzman; Jennifer Walker Bissram; Jennifer Jansen; Philip Carr; Thomas Atkinson; C Tyler Ellis; Ashley T Freeman; Kea Turner; Ethan M Basch
Journal:  Cancers (Basel)       Date:  2021-07-20       Impact factor: 6.575

  4 in total

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