Literature DB >> 17878498

The impact of Huntington's disease on family life.

Marina Vamos1, John Hambridge, Matt Edwards, John Conaghan.   

Abstract

By assessing a group of adults who grew up in a household with a parent affected by Huntington's disease (HD), the authors explored the hypothesis that HD causes major disruption in family life. High rates of family dysfunction were reported. Adverse parenting in the form of parental and maternal overcontrol and paternal abuse were endorsed for both the HD-positive and HD-negative parent. These results illustrate the impact on all members of a family coping with HD. They are particularly stark, given the overall psychological health of the sample, and suggest that there is an urgent need to use a family perspective when assessing the need for psychosocial intervention in HD.

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Year:  2007        PMID: 17878498     DOI: 10.1176/appi.psy.48.5.400

Source DB:  PubMed          Journal:  Psychosomatics        ISSN: 0033-3182            Impact factor:   2.386


  20 in total

1.  Personal factors associated with reported benefits of Huntington disease family history or genetic testing.

Authors:  Janet K Williams; Cheryl Erwin; Andrew Juhl; James Mills; Bradley Brossman; Jane S Paulsen
Journal:  Genet Test Mol Biomarkers       Date:  2010-08-19

2.  Couples' coping in prodromal Huntington disease: a mixed methods study.

Authors:  Nancy R Downing; Janet K Williams; Anne L Leserman; Jane S Paulsen
Journal:  J Genet Couns       Date:  2012-01-26       Impact factor: 2.537

3.  Patient-reported outcome measures in Huntington disease: Quality of life in neurological disorders (Neuro-QoL) social functioning measures.

Authors:  Noelle E Carlozzi; Elizabeth A Hahn; Siera M Goodnight; Anna L Kratz; Jane S Paulsen; Julie C Stout; Samuel Frank; Jennifer A Miner; David Cella; Richard C Gershon; Stephen G Schilling; Rebecca E Ready
Journal:  Psychol Assess       Date:  2017-05-29

4.  Strategies used by teens growing up in families with Huntington disease.

Authors:  Janet K Williams; Martha Driessnack; J Jackson Barnette; Kathleen J H Sparbel; Anne Leserman; Sean Thompson; Jane S Paulsen
Journal:  J Pediatr Nurs       Date:  2013-03-24       Impact factor: 2.145

5.  Experiences of teens living in the shadow of Huntington Disease.

Authors:  Kathleen J H Sparbel; Martha Driessnack; Janet K Williams; Debra L Schutte; Toni Tripp-Reimer; Meghan McGonigal-Kenney; Lori Jarmon; Jane S Paulsen
Journal:  J Genet Couns       Date:  2008-03-18       Impact factor: 2.537

6.  Two decades of Huntington disease testing: patient's demographics and reproductive choices.

Authors:  Rebekah C Krukenberg; Daniel L Koller; David D Weaver; Jennifer N Dickerson; Kimberly A Quaid
Journal:  J Genet Couns       Date:  2013-05-25       Impact factor: 2.537

7.  Life paths of patients with transthyretin-related familial amyloid polyneuropathy Val30Met: a descriptive study.

Authors:  Alice Lopes; Alexandra Sousa; Isabel Fonseca; Margarida Branco; Carla Rodrigues; Teresa Coelho; Jorge Sequeiros; Paula Freitas
Journal:  J Community Genet       Date:  2017-10-19

Review 8.  Neuroprotection for Huntington's disease: ready, set, slow.

Authors:  Steven M Hersch; H Diana Rosas
Journal:  Neurotherapeutics       Date:  2008-04       Impact factor: 7.620

9.  Caregiving by teens for family members with Huntington disease.

Authors:  Janet K Williams; Lioness Ayres; Janet Specht; Kathleen Sparbel; Mary Lou Klimek
Journal:  J Fam Nurs       Date:  2009-05-22       Impact factor: 3.818

10.  A decade of genetic counseling in frontotemporal dementia affected families: few counseling requests and much familial opposition to testing.

Authors:  S R Riedijk; M F N Niermeijer; D Dooijes; A Tibben
Journal:  J Genet Couns       Date:  2009-04-10       Impact factor: 2.537

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