Literature DB >> 17876175

Supporting siblings through the pediatric bone marrow transplant trajectory: perspectives of siblings of bone marrow transplant recipients.

Krista Lynn Wilkins1, Roberta Lynn Woodgate.   

Abstract

When a child undergoes bone marrow transplant (BMT), the entire family is affected by the demands of the transitions encountered throughout the BMT experience. Although there is a growing body of knowledge on how healthy siblings adjust to the BMT experience, there is still much to be learned. Part of a larger study aimed at detailing healthy siblings' lived experiences of BMT, this article presents findings specific to one of the study's objectives that focused on understanding siblings' perspectives of how nurses and other health professionals can best support siblings throughout the BMT trajectory. A qualitative research study guided by the philosophy of hermeneutic phenomenology was conducted. Eight siblings of pediatric BMT recipients were recruited. Semistructured, open-ended interviews, demographic data, and field notes were the primary sources of data. Interview transcripts were analyzed and interpreted using van Manen's approach. Seven themes emerged: (1) include me in the definition of "family," (2) be caring, (3) share information with me, (4) give me choices, (5) help me share my feelings, (6) provide opportunities for me to meet my peers, and (7) create a healthy hospital environment. Findings showed that siblings have definite thoughts about how nurses and other health professionals should support them, but their support needs are not being met.

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Year:  2007        PMID: 17876175     DOI: 10.1097/01.NCC.0000290811.06948.2c

Source DB:  PubMed          Journal:  Cancer Nurs        ISSN: 0162-220X            Impact factor:   2.592


  7 in total

1.  Transplant center practices for psychosocial assessment and management of pediatric hematopoietic stem cell donors.

Authors:  Lori Wiener; Jennifer A Hoag; Wendy Pelletier; Nirali N Shah; Bronwen E Shaw; Michael A Pulsipher; Jessica Bruce; Peter Bader; Andre M Willasch; Arnaud Dalissier; Gregory Guilcher; Chloe Anthias; Dennis L Confer; Jennifer A Sees; Brent Logan; Galen E Switzer
Journal:  Bone Marrow Transplant       Date:  2019-04-10       Impact factor: 5.483

2.  Hematopoietic stem cell donation: psychological perspectives of pediatric sibling donors and their parents.

Authors:  D Hutt; M Nehari; D Munitz-Shenkar; Y Alkalay; A Toren; B Bielorai
Journal:  Bone Marrow Transplant       Date:  2015-07-06       Impact factor: 5.483

3.  Family Strategies to Support Siblings of Pediatric Hematopoietic Stem Cell Transplant Patients.

Authors:  Taylor E White; Kristopher A Hendershot; Margie D Dixon; Wendy Pelletier; Ann Haight; Kristin Stegenga; Melissa A Alderfer; Lydia Cox; Jeffrey M Switchenko; Pamela Hinds; Rebecca D Pentz
Journal:  Pediatrics       Date:  2017-02       Impact factor: 7.124

4.  A brief report of caregiver needs and resource utilization during pediatric hematopoietic stem cell transplantation.

Authors:  Deborah K Mayer; Hocine Tighiouart; Norma Terrin; Susan Stewart; Emily Peterson; Stefanie Jeruss; Susan K Parsons
Journal:  J Pediatr Oncol Nurs       Date:  2009 Jul-Aug       Impact factor: 1.636

5.  Children as hematopoietic stem cell donors.

Authors: 
Journal:  Pediatrics       Date:  2010-01-25       Impact factor: 7.124

6.  Pilot Study of Educational Interventions for Pediatric Hematopoietic Stem Cell Sibling Donors to Increase Knowledge of Donation and Transplantation Procedures.

Authors:  Lori Wiener; Richard W Childs; Nirali N Shah
Journal:  J Psychosoc Oncol Res Pract       Date:  2019-07-09

7.  Audit of Psychosocial and Palliative Care Support for Children Having Allogeneic Stem Cell Transplants at the New Zealand National Allogeneic Transplant Centre.

Authors:  Amanda M Evans; Hiran Thabrew; Bruce Arroll; Nyree Cole; Ross Drake
Journal:  Children (Basel)       Date:  2021-04-29
  7 in total

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