Literature DB >> 17872874

End-of-life issues for aboriginal patients: a literature review.

Len Kelly1, Alana Minty.   

Abstract

OBJECTIVE: To understand some of the cross-cultural issues in providing palliative care to aboriginal patients. SOURCES OF INFORMATION: MEDLINE (1966 to 2005), CINAHL, PsycINFO, Google Scholar, and the Aboriginal Health Collection at the University of Manitoba were searched. Studies were selected based on their focus on both general cross-cultural caregiving and, in particular, end-of-life decision making and treatment. Only 39 relevant articles were found, half of which were opinion pieces by experienced nonaboriginal professionals; 14 were qualitative research projects from nursing and anthropologic perspectives. MAIN MESSAGE: All patients are unique. Some cultural differences might arise when providing palliative care to aboriginal patients, who value individual respect along with family and community. Involvement of family and community members in decision making around end-of-life issues is common. Aboriginal cultures often have different approaches to telling bad news and maintaining hope for patients. Use of interpreters and various communication styles add to the challenge.
CONCLUSION: Cultural differences exist between medical caregivers and aboriginal patients. These include different assumptions and expectations about how communication should occur, who should be involved, and the pace of decision making. Aboriginal patients might value indirect communication, use of silence, and sharing information and decision making with family and community members.

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Mesh:

Year:  2007        PMID: 17872874      PMCID: PMC2234625     

Source DB:  PubMed          Journal:  Can Fam Physician        ISSN: 0008-350X            Impact factor:   3.275


  25 in total

1.  Planning research for greater community involvement and long-term benefit. Special working group of the Cree Regional Child and Family Services Committee.

Authors: 
Journal:  CMAJ       Date:  2000-11-14       Impact factor: 8.262

2.  Disability and use of support services within the Canadian aboriginal population.

Authors:  K. B. Newbold
Journal:  Health Soc Care Community       Date:  1999-07

Review 3.  Native ethics and rules of behaviour.

Authors:  C C Brant
Journal:  Can J Psychiatry       Date:  1990-08       Impact factor: 4.356

4.  Cultural diversity meets end-of-life decision making.

Authors:  B Jennings
Journal:  Trustee       Date:  1994-10

Review 5.  A First Nations voice in the present creates healing in the future.

Authors:  Melanie MacKinnon
Journal:  Can J Public Health       Date:  2005 Jan-Feb

Review 6.  Ethical and clinical issues with Native-American elders. End-of-life decision making.

Authors:  K Hepburn; R Reed
Journal:  Clin Geriatr Med       Date:  1995-02       Impact factor: 3.076

Review 7.  The occasional palliative care patient: lessons we have learned.

Authors:  Len Kelly; Theresa O'Driscoll
Journal:  Can J Rural Med       Date:  2004

8.  Coping with stress among Aboriginal women and men with diabetes in Winnipeg, Canada.

Authors:  Yoshi Iwasaki; Judith Bartlett; John O'Neil
Journal:  Soc Sci Med       Date:  2005-03       Impact factor: 4.634

9.  Analysis of donor versus nondonor demographics.

Authors:  M J Schaeffer; E Johnson; E C Suddaby; S C Suddaby; L E Brigham
Journal:  J Transpl Coord       Date:  1998-03

10.  Understanding death and dying in select first nations communities in northern Manitoba: issues of culture and remote service delivery in palliative care.

Authors:  Kenneth E Hotson; Sharon M Macdonald; Bruce D Martin
Journal:  Int J Circumpolar Health       Date:  2004-03       Impact factor: 1.228

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  11 in total

Review 1.  End-of-life decision-making in Canada: the report by the Royal Society of Canada expert panel on end-of-life decision-making.

Authors:  Udo Schüklenk; Johannes J M van Delden; Jocelyn Downie; Sheila A M McLean; Ross Upshur; Daniel Weinstock
Journal:  Bioethics       Date:  2011-11       Impact factor: 1.898

2.  Provision of comprehensive, culturally competent palliative care in the Qikiqtaaluk region of Nunavut: Health care providers' perspectives.

Authors:  Daniel Vincent; Jill Rice; Jessica Chan; Pamela Grassau
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

3.  Palliative care of First Nations people: a qualitative study of bereaved family members.

Authors:  Len Kelly; Barb Linkewich; Helen Cromarty; Natalie St Pierre-Hansen; Irwin Antone; Chris Giles; Chris Gilles
Journal:  Can Fam Physician       Date:  2009-04       Impact factor: 3.275

4.  Can you hear me now? The experience of a deaf family member surrounding the death of loved ones.

Authors:  Karen A Kehl; Constance M Gartner
Journal:  Palliat Med       Date:  2009-11-12       Impact factor: 4.762

5.  A synthesis of the literature on breaking bad news or truth telling: potential for research in India.

Authors:  Lawrence Martis; Anne Westhues
Journal:  Indian J Palliat Care       Date:  2013-01

6.  An explanation and analysis of how world religions formulate their ethical decisions on withdrawing treatment and determining death.

Authors:  Susan M Setta; Sam D Shemie
Journal:  Philos Ethics Humanit Med       Date:  2015-03-11       Impact factor: 2.464

7.  An Analysis of Journey Mapping to Create a Palliative Care Pathway in a Canadian First Nations Community: Implications for Service Integration and Policy Development.

Authors:  Jessica Koski; Mary Lou Kelley; Shevaun Nadin; Maxine Crow; Holly Prince; Elaine C Wiersma; Christopher J Mushquash
Journal:  Palliat Care       Date:  2017-07-21

Review 8.  Key features of palliative care service delivery to Indigenous peoples in Australia, New Zealand, Canada and the United States: a comprehensive review.

Authors:  Shaouli Shahid; Emma V Taylor; Shelley Cheetham; John A Woods; Samar M Aoun; Sandra C Thompson
Journal:  BMC Palliat Care       Date:  2018-05-08       Impact factor: 3.234

9.  Shared decision-making and health for First Nations, Métis and Inuit women: a study protocol.

Authors:  Janet Jull; Dawn Stacey; Audrey Giles; Yvonne Boyer
Journal:  BMC Med Inform Decis Mak       Date:  2012-12-18       Impact factor: 2.796

10.  Critically examining diversity in end-of-life family caregiving: implications for equitable caregiver support and Canada's Compassionate Care Benefit.

Authors:  Melissa Giesbrecht; Valorie A Crooks; Allison Williams; Olena Hankivsky
Journal:  Int J Equity Health       Date:  2012-11-01
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