AIM: To analyze the quality of life after Pediatric Intensive Care Unit (PICU) treatment and compare the differences between quality of life in children who suffer chronic health conditions, and those who do not, post discharge from PICU. METHOD: Quality of life was assessed using the Royal Alexandra Hospital for Children (RAHC) Measure of Function which incorporates measures of domains that delineate severity or impact of disease symptoms, physical disability, mobility, emotional distress, behavior, deviation from normal growth and development, impairment in social rules, and performance at school and in leisure activities. RESULTS: Families of 371 children were contacted for RAHC Measure of Function scoring. The results showed that the majority of children with no chronic condition (88.8%), as well as those with a chronic condition other than neurodevelopmental disability (81.6%) had minimal ongoing health problems and good quality of life. Only 21.4% of children with neurodevelopmental disabilities fell into this category, 39.3% had poor quality of life and 39.3% had fair quality of life. CONCLUSION: The results suggest that the majority of patients discharged from the PICU go on to have a good quality of life. The quality of life of patients with other chronic condition did not differ significantly from children who did not suffer from a chronic condition, with the majority of both groups having minimal residual health problems. Conversely, children with neurodevelopmental disabilities were found to have a higher level of health problems and only a fair quality of life compared with the other two groups.
AIM: To analyze the quality of life after Pediatric Intensive Care Unit (PICU) treatment and compare the differences between quality of life in children who suffer chronic health conditions, and those who do not, post discharge from PICU. METHOD: Quality of life was assessed using the Royal Alexandra Hospital for Children (RAHC) Measure of Function which incorporates measures of domains that delineate severity or impact of disease symptoms, physical disability, mobility, emotional distress, behavior, deviation from normal growth and development, impairment in social rules, and performance at school and in leisure activities. RESULTS: Families of 371 children were contacted for RAHC Measure of Function scoring. The results showed that the majority of children with no chronic condition (88.8%), as well as those with a chronic condition other than neurodevelopmental disability (81.6%) had minimal ongoing health problems and good quality of life. Only 21.4% of children with neurodevelopmental disabilities fell into this category, 39.3% had poor quality of life and 39.3% had fair quality of life. CONCLUSION: The results suggest that the majority of patients discharged from the PICU go on to have a good quality of life. The quality of life of patients with other chronic condition did not differ significantly from children who did not suffer from a chronic condition, with the majority of both groups having minimal residual health problems. Conversely, children with neurodevelopmental disabilities were found to have a higher level of health problems and only a fair quality of life compared with the other two groups.
Authors: Elina Kyösti; Tero I Ala-Kokko; Pasi Ohtonen; Outi Peltoniemi; Paula Rautiainen; Janne Kataja; Hanna Ebeling; Janne H Liisanantti Journal: Intensive Care Med Date: 2018-08-22 Impact factor: 17.440
Authors: Kathleen L Meert; Ron Reeder; Aline B Maddux; Russell Banks; Robert A Berg; Athena Zuppa; Christopher J Newth; David Wessel; Murray M Pollack; Mark W Hall; Michael Quasney; Anil Sapru; Joseph A Carcillo; Patrick S McQuillen; Peter M Mourani; Ranjit S Chima; Richard Holubkov; Samuel Sorenson; James W Varni; Julie McGalliard; Wren Haaland; Kathryn B Whitlock; J Michael Dean; Jerry J Zimmerman Journal: Pediatr Crit Care Med Date: 2020-10 Impact factor: 3.971
Authors: Kathleen L Meert; Ron W Reeder; Aline B Maddux; Russell Banks; Robert A Berg; Christopher J Newth; Mark W Hall; Michael Quasney; Joseph A Carcillo; Patrick S McQuillen; Peter M Mourani; Ranjit S Chima; Richard Holubkov; Samuel Sorenson; Julie McGalliard; J Michael Dean; Jerry J Zimmerman Journal: Pediatr Crit Care Med Date: 2021-05-01 Impact factor: 3.971
Authors: Emily Z Holding; Elise M Turner; Trevor A Hall; Skyler Leonard; Kathryn R Bradbury; Cydni N Williams Journal: Neurocrit Care Date: 2021-07-16 Impact factor: 3.532