Literature DB >> 17852316

Measuring participation of children with disabilities: issues and challenges.

Wendy Coster1, Mary Alunkal Khetani.   

Abstract

PURPOSE: The aim of this paper is to examine conceptual issues that challenge development of valid and useful measures of children's participation.
METHOD: Ambiguities in the current definition of participation in the International Classification of Functioning, Disability and Health (ICF) are examined along with their implications for developing valid measures for children and youth.
RESULTS: Developers of new measures must address three key issues that will affect the ultimate meaning of participation data obtained from these instruments: uncertain criteria to distinguish activity from participation; lack of consensus on whether measures should address objective or subjective aspects of participation or both; and appropriate choice of respondent when children are the focus. Variations in how the participation construct is operationalized challenge one's ability to develop a coherent body of knowledge about children's participation and the factors that influence it.
CONCLUSION: Given current variations in how participation is being defined, both developers and users of measures of participation need to be explicit about the definition of participation that a particular measure represents and the inferences that can be drawn from the scores.

Entities:  

Mesh:

Year:  2008        PMID: 17852316     DOI: 10.1080/09638280701400375

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  33 in total

1.  Stepping Up to Rethink the Future of Rehabilitation: IV STEP Considerations and Inspirations.

Authors:  Teresa Jacobson Kimberley; Iona Novak; Lara Boyd; Eileen Fowler; Deborah Larsen
Journal:  J Neurol Phys Ther       Date:  2017-07       Impact factor: 3.649

2.  Stepping Up to Rethink the Future of Rehabilitation: IV STEP Considerations and Inspirations.

Authors:  Teresa Jacobson Kimberley; Iona Novak; Lara Boyd; Eileen Fowler; Deborah Larsen
Journal:  Pediatr Phys Ther       Date:  2017-07       Impact factor: 3.049

3.  The Burn Model Systems outcome measures: a content analysis using the International Classification of Functioning, Disability, and Health.

Authors:  Candice L Osborne; Christina Petersson; James E Graham; Walter J Meyer; Rune J Simeonsson; Oscar E Suman; Kenneth J Ottenbacher
Journal:  Disabil Rehabil       Date:  2016-10-19       Impact factor: 3.033

4.  Leisure Activity Enjoyment of Children with Autism Spectrum Disorders.

Authors:  Megan Eversole; Diane M Collins; Amol Karmarkar; Lisa Colton; Jill Phillips Quinn; Rita Karsbaek; Jessica Reinken Johnson; Nicolle Patricia Callier; Claudia L Hilton
Journal:  J Autism Dev Disord       Date:  2016-01

5.  Participation in Out-of-Home Environments for Young Children With and Without Developmental Disabilities.

Authors:  Chun Yi Lim; Mary Law; Mary Khetani; Nancy Pollock; Peter Rosenbaum
Journal:  OTJR (Thorofare N J)       Date:  2016-07-22

6.  Establishing the Cultural Equivalence of the Young Children's Participation and Environment Measure (YC-PEM) for Use in Singapore.

Authors:  Chun Yi Lim; Mary Law; Mary Khetani; Nancy Pollock; Peter Rosenbaum
Journal:  Phys Occup Ther Pediatr       Date:  2015-12-07       Impact factor: 2.360

Review 7.  Measurement properties of questionnaires assessing participation in children and adolescents with a disability: a systematic review.

Authors:  Linda Rainey; Ruth van Nispen; Carlijn van der Zee; Ger van Rens
Journal:  Qual Life Res       Date:  2014-06-27       Impact factor: 4.147

8.  Participation in Daily Activities of Young Adults with High Functioning Autism Spectrum Disorder.

Authors:  Mary McCollum; Patti LaVesser; Christine Berg
Journal:  J Autism Dev Disord       Date:  2016-03

9.  Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study.

Authors:  Jérôme Fauconnier; Heather O Dickinson; Eva Beckung; Marco Marcelli; Vicki McManus; Susan I Michelsen; Jackie Parkes; Kathryn N Parkinson; Ute Thyen; Catherine Arnaud; Allan Colver
Journal:  BMJ       Date:  2009-04-24

10.  Structural validity and internal consistency of Picture My Participation: A measure for children with disability.

Authors:  Patrik Arvidsson; Shakila Dada; Mats Granlund; Christine Imms; Lin Jun Shi; Lin Ju Kang; Ai-Wen Hwang; Karina Huus
Journal:  Afr J Disabil       Date:  2021-05-28
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