Literature DB >> 17852211

Measuring participation in people living with multiple sclerosis: a comparison of self-reported frequency, importance and self-efficacy.

Kathryn M Yorkston1, Carrie M Kuehn, Kurt L Johnson, Dawn M Ehde, Mark P Jensen, Dagmar Amtmann.   

Abstract

PURPOSE: To compare three dimensions related to participation in everyday situations in community-dwelling adults with multiple sclerosis (MS).
METHODS: Mail survey was obtained from 112 respondents. Data were analyzed using Kendall's tau-b correlation coefficients between responses to participation items relative to three question dimensions (importance, frequency, and self-efficacy) and criterion variables (mobility, depression, general health, fatigue and pain).
RESULTS: No significant associations were found between item responses in the importance dimension and the criterion variables. Weak associations were found for items in the frequency dimension, and stronger associations were found for items in the self-efficacy dimension.
CONCLUSIONS: Different dimensions of participation in specific life situations yielded different responses and associations of those responses with key criterion measures. Subjective importance of participating in everyday situations is relatively independent of measures of mobility, general health, depression, fatigue and pain. Subjective judgments of self-efficacy for participation are more closely linked to these criterion measures. Caution is warranted when interpreting scales of participation because participation is a complex construct, potentially composed of several dimensions.

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Year:  2008        PMID: 17852211      PMCID: PMC2743729          DOI: 10.1080/09638280701191891

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  27 in total

Review 1.  Activity-related quality of life in rehabilitation and traumatic brain injury.

Authors:  Mark V Johnston; Carol S Miklos
Journal:  Arch Phys Med Rehabil       Date:  2002-12       Impact factor: 3.966

2.  Preliminary results for the PAR-PRO: a measure of home and community participation.

Authors:  Glenn V Ostir; Carl V Granger; Terrie Black; Pamela Roberts; Laura Burgos; Paula Martinkewiz; Kenneth J Ottenbacher
Journal:  Arch Phys Med Rehabil       Date:  2006-08       Impact factor: 3.966

3.  Depressive symptoms and severity of illness in multiple sclerosis: epidemiologic study of a large community sample.

Authors:  Lydia Chwastiak; Dawn M Ehde; Laura E Gibbons; Mark Sullivan; James D Bowen; George H Kraft
Journal:  Am J Psychiatry       Date:  2002-11       Impact factor: 18.112

4.  Self-administered Expanded Disability Status Scale with functional system scores correlates well with a physician-administered test.

Authors:  J Bowen; L Gibbons; A Gianas; G H Kraft
Journal:  Mult Scler       Date:  2001-06       Impact factor: 6.312

5.  Predictors of handicap situations following post-stroke rehabilitation.

Authors:  J Desrosiers; L Noreau; A Rochette; G Bravo; C Boutin
Journal:  Disabil Rehabil       Date:  2002-10-15       Impact factor: 3.033

6.  Validation and utility of a self-report version of PRIME-MD: the PHQ primary care study. Primary Care Evaluation of Mental Disorders. Patient Health Questionnaire.

Authors:  R L Spitzer; K Kroenke; J B Williams
Journal:  JAMA       Date:  1999-11-10       Impact factor: 56.272

7.  Depression during exacerbations in multiple sclerosis: the importance of uncertainty.

Authors:  D C Kroencke; D R Denney; S G Lynch
Journal:  Mult Scler       Date:  2001-08       Impact factor: 6.312

8.  Use of community integration questionnaire (CIQ) to characterize changes in functioning for individuals with traumatic brain injury who participated in a post-acute rehabilitation programme.

Authors:  Gary S Seale; Jeromes S Caroselli; Walter M High; Cory L Becker; Leah E Neese; Randall Scheibel
Journal:  Brain Inj       Date:  2002-11       Impact factor: 2.311

Review 9.  Measures of social outcomes in disability research.

Authors:  M P Dijkers; G Whiteneck; R El-Jaroudi
Journal:  Arch Phys Med Rehabil       Date:  2000-12       Impact factor: 3.966

10.  Community integration following multidisciplinary rehabilitation for traumatic brain injury.

Authors:  Tamara E Goranson; Roger E Graves; Deborah Allison; Ron La Freniere
Journal:  Brain Inj       Date:  2003-09       Impact factor: 2.311

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  7 in total

Review 1.  A review of the psychometric properties of generic utility measures in multiple sclerosis.

Authors:  Ayse Kuspinar; Nancy E Mayo
Journal:  Pharmacoeconomics       Date:  2014-08       Impact factor: 4.981

2.  Physical activity and depression in middle and older-aged adults with multiple sclerosis.

Authors:  Mark P Jensen; Ivan R Molton; Kevin J Gertz; Charles H Bombardier; Dori E Rosenberg
Journal:  Disabil Health J       Date:  2012-07-15       Impact factor: 2.554

3.  Self-reported Reasons for Changes in Performance of Daily Activities During a 2-Year Multidisciplinary Multiple Sclerosis Rehabilitation.

Authors:  Maarit E Karhula; Katja Kanelisto; Päivi Hämäläinen; Juhani Ruutiainen; Pertti Era; Arja Häkkinen; Anna-Liisa Salminen
Journal:  Int J MS Care       Date:  2021-09-14

4.  Self-efficacy as a predictor of self-reported physical, cognitive, and social functioning in multiple sclerosis.

Authors:  Margaret M Schmitt; Yael Goverover; John Deluca; Nancy Chiaravalloti
Journal:  Rehabil Psychol       Date:  2013-12-09

5.  Variables associated with communicative participation in people with multiple sclerosis: a regression analysis.

Authors:  Carolyn Baylor; Kathryn Yorkston; Alyssa Bamer; Deanna Britton; Dagmar Amtmann
Journal:  Am J Speech Lang Pathol       Date:  2009-11-30       Impact factor: 2.408

6.  Cross-Sectional Examination of the Associations Between Symptoms, Community Integration, and Mental Health in Multiple Sclerosis.

Authors:  Anna L Kratz; Dawn M Ehde; Marisol A Hanley; Mark P Jensen; Travis L Osborne; George H Kraft
Journal:  Arch Phys Med Rehabil       Date:  2015-10-31       Impact factor: 3.966

7.  Correlates of participation in meaningful activities among people with multiple sclerosis.

Authors:  Matthew A Plow; Marcia Finlayson; Douglas Gunzler; Allen W Heinemann
Journal:  J Rehabil Med       Date:  2015-06       Impact factor: 2.912

  7 in total

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