Literature DB >> 17846089

Palliative care provision for people with intellectual disabilities: interviews with specialist palliative care professionals in London.

I Tuffrey-Wijne1, L McEnhill, L Curfs, S Hollins.   

Abstract

Growing numbers of people with intellectual disabilities (ID) are in need of palliative care, but there is inequity of access to palliative care services for this group. This study investigates the issues and difficulties arising for palliative care staff in providing care for people with ID. Semi-structured interviews were conducted with 32 palliative care professionals in London. Factors affecting palliative care provision for people with ID included social issues (home situation and family issues), emotional and cognitive issues (fear, patient understanding, communication, cooperation and capacity to consent), problems with assessment, and the impact on staff and other patients. An underlying theme was the need to take more time and to build trust. Despite the challenges, many palliative care staff managed the care of people with ID well. The importance of collaboration with carers and ID services is highlighted. Further studies are needed to investigate how widespread the problems are.

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Year:  2007        PMID: 17846089     DOI: 10.1177/0269216307082019

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  3 in total

1.  Health issues of older people with intellectual disability in group homes

Authors:  Barbara Bowers; Ruth Webber; Christine Bigby
Journal:  J Intellect Dev Disabil       Date:  2014

Review 2.  Palliative care for patients with communication and cognitive difficulties.

Authors:  Kyle Sue; Paolo Mazzotta; Elizabeth Grier
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

3.  The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review.

Authors:  Emily Adam; Katherine E Sleeman; Sarah Brearley; Katherine Hunt; Irene Tuffrey-Wijne
Journal:  Palliat Med       Date:  2020-06-17       Impact factor: 4.762

  3 in total

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