Literature DB >> 17714247

Population genomics and research ethics with socially identifable groups.

Joan L McGregor1.   

Abstract

In this paper, the author questions whether the research ethics guidelines and procedures are robust enough to protect groups when conducting genetics research with socially identifiable populations, particularly with Native American groups. The author argues for a change in the federal guidelines in substance and procedures of conducting genetic research with socially identifiable groups.

Mesh:

Year:  2007        PMID: 17714247     DOI: 10.1111/j.1748-720X.2007.00160.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  5 in total

1.  Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel.

Authors:  Stephanie M Fullerton; Sandra S-J Lee
Journal:  BMC Med Ethics       Date:  2011-09-26       Impact factor: 2.652

2.  Assessing tribal youth physical activity and programming using a community-based participatory research approach.

Authors:  Cynthia Perry; Barbara Hoffman
Journal:  Public Health Nurs       Date:  2010 Mar-Apr       Impact factor: 1.462

3.  The Precision Medicine Nation.

Authors:  Maya Sabatello; Paul S Appelbaum
Journal:  Hastings Cent Rep       Date:  2017-07       Impact factor: 2.683

Review 4.  Addressing underrepresentation in genomics research through community engagement.

Authors:  Amy A Lemke; Edward D Esplin; Aaron J Goldenberg; Claudia Gonzaga-Jauregui; Neil A Hanchard; Julie Harris-Wai; Justin E Ideozu; Rosario Isasi; Andrew P Landstrom; Anya E R Prince; Erin Turbitt; Maya Sabatello; Samantha A Schrier Vergano; Matthew R G Taylor; Joon-Ho Yu; Kyle B Brothers; Nanibaa' A Garrison
Journal:  Am J Hum Genet       Date:  2022-09-01       Impact factor: 11.043

5.  Ethics and Collateral Findings in Pragmatic Clinical Trials.

Authors:  Stephanie R Morain; Kevin Weinfurt; Juli Bollinger; Gail Geller; Debra Jh Mathews; Jeremy Sugarman
Journal:  Am J Bioeth       Date:  2020-01       Impact factor: 11.229

  5 in total

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