Fary Khan1, Julie Pallant, Caroline Brand. 1. Department of Rehabilitation Medicine, Royal Melbourne Hospital, Melbourne, Australia. fary.khan@mh.org.au
Abstract
PURPOSE: To describe the level of caregiver strain and factors associated with caregiver self-efficacy and quality of life (QoL) in a community cohort with multiple sclerosis (MS). METHOD: A cross-sectional survey of 62 informal caregivers and 101 participants with confirmed MS and quantified physical and cognitive disability recruited from a tertiary hospital MS database. Structured interviews conducted at home using standardized assessments to measure: (i) Caregiver strain and subjective burden of care; (ii) participant with MS and caregiver QoL and self-efficacy; and (iii) participant with MS level of depression, anxiety and stress. RESULTS: The mean caregiver age was 54 years (range 37 - 62). The mean caregiver strain score was 5.63 (SD 3.63). Twenty-six of 62 (42%) caregivers reported strain for items such as emotional adjustments, demands on time, change in personal plan and disrupted sleep. Caregiver burden was higher in those caring for the more severely affected persons with MS, especially those with higher depression, anxiety and stress levels. The caregiver strain correlated with a lower QoL in both the person with MS and their caregiver, but not with their self-efficacy scores. CONCLUSION: Caregivers of persons with MS reporting high levels of caregiver strain experienced a lower QoL and were caring for persons with MS with a lower QoL and higher levels of depression and anxiety. Interventions to reduce caregiver strain and burden in those at risk are necessary to reduce poor outcomes among both caregivers and care recipients with MS.
PURPOSE: To describe the level of caregiver strain and factors associated with caregiver self-efficacy and quality of life (QoL) in a community cohort with multiple sclerosis (MS). METHOD: A cross-sectional survey of 62 informal caregivers and 101 participants with confirmed MS and quantified physical and cognitive disability recruited from a tertiary hospital MS database. Structured interviews conducted at home using standardized assessments to measure: (i) Caregiver strain and subjective burden of care; (ii) participant with MS and caregiver QoL and self-efficacy; and (iii) participant with MS level of depression, anxiety and stress. RESULTS: The mean caregiver age was 54 years (range 37 - 62). The mean caregiver strain score was 5.63 (SD 3.63). Twenty-six of 62 (42%) caregivers reported strain for items such as emotional adjustments, demands on time, change in personal plan and disrupted sleep. Caregiver burden was higher in those caring for the more severely affected persons with MS, especially those with higher depression, anxiety and stress levels. The caregiver strain correlated with a lower QoL in both the person with MS and their caregiver, but not with their self-efficacy scores. CONCLUSION: Caregivers of persons with MS reporting high levels of caregiver strain experienced a lower QoL and were caring for persons with MS with a lower QoL and higher levels of depression and anxiety. Interventions to reduce caregiver strain and burden in those at risk are necessary to reduce poor outcomes among both caregivers and care recipients with MS.
Authors: Gillian G Leibach; Marilyn Stern; Adriana Aguayo Arelis; Miguel Angel Macias Islas; Brenda Viridiana Rábago Barajas Journal: Int J MS Care Date: 2016 Jan-Feb
Authors: Nalin Payakachat; Paul O Gubbins; Denise Ragland; Schwanda K Flowers; Cindy D Stowe Journal: Am J Pharm Educ Date: 2014-02-12 Impact factor: 2.047
Authors: Carolina Oc Latorraca; Ana Luiza C Martimbianco; Daniela V Pachito; Maria Regina Torloni; Rafael L Pacheco; Juliana Gomes Pereira; Rachel Riera Journal: Cochrane Database Syst Rev Date: 2019-10-22