Literature DB >> 17641113

Living with moderate or severe traumatic brain injury: the meaning of family members' experiences.

Eija Jumisko1, Jan Lexell, Siv Söderberg.   

Abstract

Traumatic brain injury (TBI) has long-lasting consequences not only for the individual with the injury but also for family members. The aim of this study is to elucidate the meaning of family members' experiences of living with an individual with moderate or severe TBI. The data have been collected by means of qualitative research interviews with 8 family member participants. A phenomenological hermeneutic interpretation (Ricouer, 1976) of the data reveal that family members struggle with their own suffering while showing compassion for the injured person. Their willingness to assume care for the injured person is derived from their feeling of natural love and the ethical demand to be responsible for the other. Hope and natural love from close relatives, the afflicted person, and other family members give the family members strength. It is important that professionals pay more attention to the suffering of close relatives.

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Year:  2007        PMID: 17641113     DOI: 10.1177/1074840707303842

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  10 in total

1.  A new scale to measure family members' perception of community health care services for persons with Huntington disease.

Authors:  Valmi D Sousa; Janet K Williams; Jack J Barnette; David A Reed
Journal:  J Eval Clin Pract       Date:  2010-03-11       Impact factor: 2.431

2.  Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures.

Authors:  Noelle E Carlozzi; Phillip A Ianni; Rael T Lange; Tracey A Brickell; Michael A Kallen; Elizabeth A Hahn; Louis M French; David Cella; Jennifer A Miner; David S Tulsky
Journal:  Arch Phys Med Rehabil       Date:  2018-07-31       Impact factor: 3.966

3.  The emotional experiences of family carers in Huntington disease.

Authors:  Janet K Williams; Heather Skirton; Jane S Paulsen; Toni Tripp-Reimer; Lori Jarmon; Meghan McGonigal Kenney; Emily Birrer; Bonnie L Hennig; Joann Honeyford
Journal:  J Adv Nurs       Date:  2009-02-09       Impact factor: 3.187

4.  Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Fatigue and Sleep Disturbance Item Banks.

Authors:  Noelle E Carlozzi; Phillip A Ianni; David S Tulsky; Tracey A Brickell; Rael T Lange; Louis M French; David Cella; Michael A Kallen; Jennifer A Miner; Anna L Kratz
Journal:  Arch Phys Med Rehabil       Date:  2018-06-20       Impact factor: 3.966

Review 5.  Mental Trauma Experienced by Caregivers of patients with Diffuse Axonal Injury or Severe Traumatic Brain Injury.

Authors:  Syed Tajuddin Syed Hassan; Husna Jamaludin; Rosna Abd Raman; Haliza Mohd Riji; Khaw Wan Fei
Journal:  Trauma Mon       Date:  2013-08-11

6.  Initial experiences of family caregivers of survivors of a traumatic brain injury.

Authors:  Mandi Broodryk; Chrisma Pretorius
Journal:  Afr J Disabil       Date:  2015-08-11

7.  An App-Based Just-in-Time Adaptive Self-management Intervention for Care Partners (CareQOL): Protocol for a Pilot Trial.

Authors:  Noelle E Carlozzi; Sung Won Choi; Zhenke Wu; Jennifer A Miner; Angela K Lyden; Christopher Graves; Jitao Wang; Srijan Sen
Journal:  JMIR Res Protoc       Date:  2021-12-09

8.  Sleep impairment is related to health-related quality of life among caregivers of lower-functioning traumatic brain injury survivors.

Authors:  Noelle E Carlozzi; Nicholas R Boileau; Robin A Hanks; Angelle M Sander; Risa Nakase-Richardson; Jill P Massengale
Journal:  Rehabil Psychol       Date:  2020-08-10

9.  Hospital information technology in home care.

Authors:  Xiao-Ying Zhang; Pei-Ying Zhang
Journal:  Exp Ther Med       Date:  2016-09-06       Impact factor: 2.447

10.  "That's what you do for people you love": A qualitative study of social support and recovery from a musculoskeletal injury.

Authors:  Khic-Houy Prang; Sharon Newnam; Janneke Berecki-Gisolf
Journal:  PLoS One       Date:  2018-04-25       Impact factor: 3.240

  10 in total

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