Literature DB >> 17641075

What are patients' priorities for palliative care research? Focus group study.

P Perkins1, S Barclay, S Booth.   

Abstract

To elucidate the research priorities of palliative care patients we conducted focus groups with day therapy and hospice in-patients with cancer with an estimated prognosis of 6 months or less. Patients were positive about taking part in this research project identifying five main priorities for future research--talking with patients; help for patients and families; oncology; symptoms; medication/treatments. Patients gave great emphasis to communication issues and little to symptom control. A patient questionnaire was created with these themes which is currently being used in five hospices across East Anglia. This paper describes the qualitative component of the study.

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Year:  2007        PMID: 17641075     DOI: 10.1177/0269216307077353

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  9 in total

1.  A qualitative study on the involvement of adolescents and young adults (AYAs) with cancer during multiple research phases: "plan, structure, and discuss".

Authors:  Camila Rosalinde van Ham; Vivian Wilhelmina Gerarda Burgers; Sophia Helena Eva Sleeman; Annemiek Dickhout; Niels Christiaan Gerardus Laurus Harthoorn; Eveliene Manten-Horst; Mies Christina van Eenbergen; Olga Husson
Journal:  Res Involv Engagem       Date:  2022-07-08

2.  Legacy activities as interventions approaching the end of life.

Authors:  Rebecca S Allen; Michelle M Hilgeman; Margaret A Ege; John L Shuster; Louis D Burgio
Journal:  J Palliat Med       Date:  2008-09       Impact factor: 2.947

3.  The Legacy Project Intervention to Enhance Meaningful Family Interactions: Case Examples.

Authors:  Rebecca S Allen
Journal:  Clin Gerontol       Date:  2009       Impact factor: 2.619

Review 4.  Which experiences of health care delivery matter to service users and why? A critical interpretive synthesis and conceptual map.

Authors:  Vikki Entwistle; Danielle Firnigl; Mandy Ryan; Jillian Francis; Philip Kinghorn
Journal:  J Health Serv Res Policy       Date:  2011-10-03

Review 5.  Partnering with frail or seriously ill patients in research: a systematic review.

Authors:  Claire Ludwig; Ian D Graham; Wendy Gifford; Josee Lavoie; Dawn Stacey
Journal:  Res Involv Engagem       Date:  2020-09-11

Review 6.  Dying persons' perspectives on, or experiences of, participating in research: An integrative review.

Authors:  Melissa J Bloomer; Alison M Hutchinson; Laura Brooks; Mari Botti
Journal:  Palliat Med       Date:  2017-12-13       Impact factor: 4.762

Review 7.  Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review.

Authors:  Eleni Chambers; Clare Gardiner; Jill Thompson; Jane Seymour
Journal:  Palliat Med       Date:  2019-06-28       Impact factor: 4.762

Review 8.  Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review.

Authors:  Claire Ludwig; Ian D Graham; Josee Lavoie; Wendy Gifford; Dawn Stacey
Journal:  Res Involv Engagem       Date:  2021-01-31

9.  Current trends in patient and public involvement in cancer research: A systematic review.

Authors:  Kathrine Hoffmann Pii; Lone Helle Schou; Karin Piil; Mary Jarden
Journal:  Health Expect       Date:  2018-10-30       Impact factor: 3.377

  9 in total

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