Literature DB >> 17617091

'I don't want to be in that big city; this is my country here': research findings on Aboriginal peoples' preference to die at home.

Pam McGrath1.   

Abstract

OBJECTIVE: The present article provides findings from a two-year study on Indigenous palliative care conducted in the Northern Territory that explored and documented wishes in relation to place of death for rural and remote Aboriginal people.
DESIGN: Qualitative, open-ended interviews, audio-recorded, transcribed verbatim, and thematically analysed. PARTICIPANTS: There were a total of 72 interviews completed with Indigenous patients (n = 10), Indigenous caregivers (n = 19), Indigenous and non-Indigenous health care workers (n = 41), and interpreters (n = 2).
RESULTS: The findings provide a clear articulation of the wish of Aboriginal people from rural and remote areas to die at home connected to land and family. Strong cultural reasons were given for this preference, including the strong connection with land and community, a belief in 'death country', the importance of passing on sacred knowledge to the appropriate family member, the significance of ensuring that the dying individual's 'animal spirit' is able to return to the land, and the imperative that the 'right person' in the family network is available to provide the care.
CONCLUSION: The strong wish to die at home informs the importance of building up local health and palliative care services and avoiding, where possible, the need for relocation for health care to the major metropolitan hospitals during end-of-life care.

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Year:  2007        PMID: 17617091     DOI: 10.1111/j.1440-1584.2007.00904.x

Source DB:  PubMed          Journal:  Aust J Rural Health        ISSN: 1038-5282            Impact factor:   1.662


  9 in total

1.  Palliative care of First Nations people: a qualitative study of bereaved family members.

Authors:  Len Kelly; Barb Linkewich; Helen Cromarty; Natalie St Pierre-Hansen; Irwin Antone; Chris Giles; Chris Gilles
Journal:  Can Fam Physician       Date:  2009-04       Impact factor: 3.275

2.  An explanation and analysis of how world religions formulate their ethical decisions on withdrawing treatment and determining death.

Authors:  Susan M Setta; Sam D Shemie
Journal:  Philos Ethics Humanit Med       Date:  2015-03-11       Impact factor: 2.464

3.  Providing Palliative Care in Rural Nepal: Perceptions of Mid-Level Health Workers.

Authors:  Rajesh N Gongal; Shambhu Kumar Upadhyay; Kedar Prasad Baral; Max Watson; George W Kernohan
Journal:  Indian J Palliat Care       Date:  2018 Apr-Jun

4.  A Website Supporting Sensitive Religious and Cultural Advance Care Planning (ACPTalk): Formative and Summative Evaluation.

Authors:  Amanda Pereira-Salgado; Patrick Mader; Clare O'Callaghan; Leanne Boyd
Journal:  JMIR Res Protoc       Date:  2018-04-16

5.  Pacific meets west in addressing palliative care for Pacific populations in Aotearoa/New Zealand: a qualitative study.

Authors:  Sunia Foliaki; Veisinia Pulu; Hayley Denison; Mark Weatherall; Jeroen Douwes
Journal:  BMC Palliat Care       Date:  2020-07-08       Impact factor: 3.234

6.  Symptom-Related Distress among Indigenous Australians in Specialist End-of-Life Care: Findings from the Multi-Jurisdictional Palliative Care Outcomes Collaboration Data.

Authors:  John A Woods; Claire E Johnson; Hanh T Ngo; Judith M Katzenellenbogen; Kevin Murray; Sandra C Thompson
Journal:  Int J Environ Res Public Health       Date:  2020-04-30       Impact factor: 3.390

7.  Causal Attributions in an Australian Aboriginal Family With Marfan Syndrome: A Qualitative Study.

Authors:  Aideen M McInerney-Leo; Jennifer West; Bettina Meiser; Malcolm West; Matthew A Brown; Emma Duncan
Journal:  Front Genet       Date:  2020-05-07       Impact factor: 4.599

8.  Understanding Aboriginal Peoples' Cultural and Family Connections Can Help Inform the Development of Culturally Appropriate Cancer Survivorship Models of Care.

Authors:  Eli Ristevski; Sharyn Thompson; Sharon Kingaby; Claire Nightingale; Mahesh Iddawela
Journal:  JCO Glob Oncol       Date:  2020-02

Review 9.  Improving Access to Cancer Treatment Services in Australia's Northern Territory-History and Progress.

Authors:  Emma V Taylor; Rosalie D Thackrah; Sandra C Thompson
Journal:  Int J Environ Res Public Health       Date:  2022-06-23       Impact factor: 4.614

  9 in total

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