AIM: To describe recurrence risk information currently being obtained by families affected by Autism Spectrum Disorder (ASD). METHODS: Structured telephone interview of parents of 21 children who received a diagnosis of ASD at Calvary Health Care Tasmania, Hobart, Australia between May 2005 and May 2006. RESULTS: Only one of the 21 parents knew their true recurrence risk. Many overestimated their risk substantially, and in four cases this had led to a decision against increasing family size. Eleven parents said they had received no information about recurrence risk, and only one cited medical practitioners as a source of information about recurrence risk. CONCLUSION: Current provision of information about recurrence risk to families affected by ASD is inadequate.
AIM: To describe recurrence risk information currently being obtained by families affected by Autism Spectrum Disorder (ASD). METHODS: Structured telephone interview of parents of 21 children who received a diagnosis of ASD at Calvary Health Care Tasmania, Hobart, Australia between May 2005 and May 2006. RESULTS: Only one of the 21 parents knew their true recurrence risk. Many overestimated their risk substantially, and in four cases this had led to a decision against increasing family size. Eleven parents said they had received no information about recurrence risk, and only one cited medical practitioners as a source of information about recurrence risk. CONCLUSION: Current provision of information about recurrence risk to families affected by ASD is inadequate.
Authors: Katherine E MacDuffie; Lauren Turner-Brown; Annette M Estes; Benjamin S Wilfond; Stephen R Dager; Juhi Pandey; Lonnie Zwaigenbaum; Kelly N Botteron; John R Pruett; Joseph Piven; Holly L Peay Journal: J Pediatr Psychol Date: 2020-03-01
Authors: Sally Ozonoff; Gregory S Young; Alice Carter; Daniel Messinger; Nurit Yirmiya; Lonnie Zwaigenbaum; Susan Bryson; Leslie J Carver; John N Constantino; Karen Dobkins; Ted Hutman; Jana M Iverson; Rebecca Landa; Sally J Rogers; Marian Sigman; Wendy L Stone Journal: Pediatrics Date: 2011-08-15 Impact factor: 7.124