Literature DB >> 17545365

Between stillness and story: lessons of children's illness narratives.

Sayantani DasGupta1.   

Abstract

In answer to an increasingly impersonal medical environment, educators in the medical humanities frequently turn to narrative studies to teach students for an emotionally fulfilling and interpersonally related professional practice. However, to elicit, to interpret, and to integrate patient stories into their work effectively, physicians must be in a state of awareness and attention, attuned to their emotional and intellectual reactions. The experiences of children and their families, in the form of pediatric illness narratives, hold unique insights for physicians in how to engage in an ethical, empathetic, and self-reflective practice. In particular, these narratives demonstrate the importance not only of story but also of stillness or silence to the practice of medicine. The voices of patients and their families hold both literal and allegorical lessons for physicians in how to move toward a medical practice involving not only diagnosis and treatment but also recognition and healing.

Entities:  

Mesh:

Year:  2007        PMID: 17545365     DOI: 10.1542/peds.2006-2619

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  5 in total

Review 1.  What to do with stories: the sciences of narrative medicine.

Authors:  Rita Charon
Journal:  Can Fam Physician       Date:  2007-08       Impact factor: 3.275

2.  Lessons in Stories: Why Narrative Medicine Has a Role in Pediatric Palliative Care Training.

Authors:  Natalie Lanocha
Journal:  Children (Basel)       Date:  2021-04-22

3.  Balancing health benefits and social sacrifices: a qualitative study of how screening-detected celiac disease impacts adolescents' quality of life.

Authors:  Anna Rosén; Anneli Ivarsson; Katrina Nordyke; Eva Karlsson; Annelie Carlsson; Lars Danielsson; Lotta Högberg; Maria Emmelin
Journal:  BMC Pediatr       Date:  2011-05-10       Impact factor: 2.125

4.  A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network.

Authors:  Rebecca C Spillmann; Allyn McConkie-Rosell; Loren Pena; Yong-Hui Jiang; Kelly Schoch; Nicole Walley; Camilla Sanders; Jennifer Sullivan; Stephen R Hooper; Vandana Shashi
Journal:  Orphanet J Rare Dis       Date:  2017-04-17       Impact factor: 4.123

5.  What can we learn from simulation-based training to improve skills for end-of-life care? Insights from a national project in Israel.

Authors:  Mayer Brezis; Yael Lahat; Meir Frankel; Alan Rubinov; Davina Bohm; Matan J Cohen; Meni Koslowsky; Orit Shalomson; Charles L Sprung; Henia Perry-Mezare; Rina Yahalom; Amitai Ziv
Journal:  Isr J Health Policy Res       Date:  2017-11-06
  5 in total

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