Literature DB >> 17543059

Genetic exceptionalism and legislative pragmatism.

Mark A Rothstein1.   

Abstract

Genetic-specific nondiscrimination laws have been enacted in most states, but the laws are ineffective and increase the stigma of genetic conditions. Whether these laws are better than no new legislation depends on their consequences and a recognition of their limitations.

Mesh：

Year:  2007        PMID： 17543059     DOI： 10.1111/j.1748-720X.2007.00154.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN： 1073-1105            Impact factor:   1.718


  9 in total

1.  Civilian and military genetics: nondiscrimination policy in a post-GINA world.

Authors:  Susannah Baruch; Kathy Hudson
Journal:  Am J Hum Genet       Date:  2008-10       Impact factor: 11.025

2.  Stem cell policy exceptionalism: proceed with caution.

Authors:  Geoffrey P Lomax; Steven R Peckman
Journal:  Stem Cell Rev Rep       Date:  2012-06       Impact factor: 5.739

Review 3.  Preventing discrimination based on psychiatric risk biomarkers.

Authors:  Cody Brannan; Alexandra L Foulkes; Gabriel Lázaro-Muñoz
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2018-04-06       Impact factor: 3.568

4.  Security controls in an integrated Biobank to protect privacy in data sharing: rationale and study design.

Authors:  Takako Takai-Igarashi; Kengo Kinoshita; Masao Nagasaki; Soichi Ogishima; Naoki Nakamura; Sachiko Nagase; Satoshi Nagaie; Tomo Saito; Fuji Nagami; Naoko Minegishi; Yoichi Suzuki; Kichiya Suzuki; Hiroaki Hashizume; Shinichi Kuriyama; Atsushi Hozawa; Nobuo Yaegashi; Shigeo Kure; Gen Tamiya; Yoshio Kawaguchi; Hiroshi Tanaka; Masayuki Yamamoto
Journal:  BMC Med Inform Decis Mak       Date:  2017-07-06       Impact factor: 2.796

5.  Thought leader perspectives on benefits and harms in precision medicine research.

Authors:  Laura M Beskow; Catherine M Hammack; Kathleen M Brelsford
Journal:  PLoS One       Date:  2018-11-26       Impact factor: 3.240

6.  Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism.

Authors:  Nanibaa' A Garrison; Kyle B Brothers; Aaron J Goldenberg; John A Lynch
Journal:  Am J Bioeth       Date:  2019-01       Impact factor: 11.229

7.  Confidential genetic testing and electronic health records: A survey of current practices among Huntington disease testing centers.

Authors:  Celeste C Eno; Stacey K Barton; Naghmeh Dorrani; Stephen D Cederbaum; Joshua L Deignan; Wayne W Grody
Journal:  Mol Genet Genomic Med       Date:  2019-11-07       Impact factor: 2.183

8.  Two cheers for GINA?

Authors:  Amy L McGuire; Mary Anderlik Majumder
Journal:  Genome Med       Date:  2009-01-20       Impact factor: 11.117

Review 9.  Genetic data and electronic health records: a discussion of ethical, logistical and technological considerations.

Authors:  Kimberly Shoenbill; Norman Fost; Umberto Tachinardi; Eneida A Mendonca
Journal:  J Am Med Inform Assoc       Date:  2013-06-14       Impact factor: 4.497
  9 in total

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