Literature DB >> 17514995

The experience of adolescent women living with spina bifida. Part II: Peer relationships.

Gayle Roux1, Kathleen J Sawin, Melissa Hayden Bellin, Constance F Buran, Timothy J Brei.   

Abstract

Relationships are much more complex for those with disabilities than for those without disabilities. This study was part of a larger mixed-method investigation that explored comprehensive aspects of adaptation in adolescents with spina bifida (SB). The purpose of this qualitative component of the study was to explore the experiences of peer relationships in 31 adolescent women with SB. The participants were interviewed, and analysis was conducted for common themes. The five major themes and one subtheme were peers without disabilities (subtheme: peers with disabilities), normalization, challenges in peer connectedness, peer connectedness with adults, and romantic connectedness. Whereas some participants voiced close connections with peers, others described prejudices, stereotyping, and limited dating experiences. Results from this study support the need for comprehensive assessment of social relationships in adolescent women with SB and active interventions to address problems identified. Rehabilitation nurses are in a key position to implement social interventions in adolescents and young women with SB.

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Year:  2007        PMID: 17514995     DOI: 10.1002/j.2048-7940.2007.tb00162.x

Source DB:  PubMed          Journal:  Rehabil Nurs        ISSN: 0278-4807            Impact factor:   1.625


  3 in total

1.  Observed macro- and micro-level parenting behaviors during preadolescent family interactions as predictors of adjustment in emerging adults with and without spina bifida.

Authors:  Caitlin B Murray; Christina M Amaro; Katie A Devine; Alexandra M Psihogios; Lexa K Murphy; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2014-05-26

2.  Child, Parent, and Family Adjustment for Patients Followed in a Multidisciplinary Spina Bifida Clinic.

Authors:  Tess S Simpson; Leah A Grande; Jessica J Kenny; Pamela E Wilson; Robin L Peterson
Journal:  Top Spinal Cord Inj Rehabil       Date:  2022-08-17

3.  Exploring an Existing Weight Management App for Use With Adolescents and Young Adults With Spina Bifida: Usability Study.

Authors:  Colleen Stiles-Shields; Brittney Garcia; Kimberly Villota; Elicia Wartman; Adrien M Winning; Grayson N Holmbeck
Journal:  JMIR Pediatr Parent       Date:  2019-10-10
  3 in total

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