Literature DB >> 17459813

Israeli nurses and genetic information disclosure.

Sivia Barnoy1, Nili Tabak.   

Abstract

The debate continues about whether people have a duty to pass on the positive results of their genetic tests to relatives who are at risk from the same disease, and, should they refuse, whether physicians and genetic counselors then have the duty to do so. To date, the role and views of nurses in this debate have not been investigated. In our study, a sample of Israeli nurses, untrained in genetics, were asked for their theoretical opinions and what practical steps they would take in the case of patients' refusal to disclose. The nurses were very sure that patients should inform their families but were equally sure that nurses must respect their decision to disclose or not. Few said they would take practical steps to disclose information if the patient objected. The authors believe that the most useful and appropriate role for nurses in this field is in working to bring about co-operation between patients and family members.

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Year:  2007        PMID: 17459813     DOI: 10.1177/0969733007075862

Source DB:  PubMed          Journal:  Nurs Ethics        ISSN: 0969-7330            Impact factor:   2.874


  4 in total

1.  Integrating genetic and genomic information into effective cancer care in diverse populations.

Authors:  L Fashoyin-Aje; K Sanghavi; K Bjornard; J Bodurtha
Journal:  Ann Oncol       Date:  2013-10       Impact factor: 32.976

2.  Supporting disclosure of genetic information to family members: professional practice and timelines in cancer genetics.

Authors:  Benjamin Derbez; Antoine de Pauw; Dominique Stoppa-Lyonnet; Sandrine de Montgolfier
Journal:  Fam Cancer       Date:  2017-07       Impact factor: 2.375

3.  Genetic diseases and information to relatives: practical and ethical issues for professionals after introduction of a legal framework in France.

Authors:  Diane d'Audiffret Van Haecke; Sandrine de Montgolfier
Journal:  Eur J Hum Genet       Date:  2018-02-27       Impact factor: 4.246

Review 4.  Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research.

Authors:  Sandi Dheensa; Angela Fenwick; Shiri Shkedi-Rafid; Gillian Crawford; Anneke Lucassen
Journal:  Genet Med       Date:  2015-06-25       Impact factor: 8.822

  4 in total

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