Literature DB >> 17305463

Coping with food allergy: exploring the role of the online support group.

Neil S Coulson1, Rebecca C Knibb.   

Abstract

The aims of this study were to explore the reasons for participation in an online support group for individuals affected by food allergy, its perceived advantages and disadvantages as well as impact on the relationship with healthcare providers. A total of 32 members of the Food Allergy Survivors Together (F.A.S.T.) online support group completed an online structured interview and responses were analysed using thematic analysis. Group members identified a range of benefits, including accessibility, receipt of social support as well as guidance on coping strategies. The only disadvantages identified revolved around the accuracy and trust in information exchanged via the group bulletin board. Group participation did appear to impact on relationships with healthcare providers with several members reporting greater empowerment through decision-making, though in contrast some experienced difficulties in discussing their online support experiences and information obtained with their healthcare providers.

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Mesh:

Year:  2007        PMID: 17305463     DOI: 10.1089/cpb.2006.9978

Source DB:  PubMed          Journal:  Cyberpsychol Behav        ISSN: 1094-9313


  11 in total

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3.  Exploring Social Support in an Online Support Community for Tourette Syndrome and Tic Disorders: Analysis of Postings.

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4.  Extracting Additional Influences From Physician Profiles With Topic Modeling: Impact on Ratings and Page Views in Online Healthcare Communities.

Authors:  Xiaoling Wei; Yuan-Teng Hsu
Journal:  Front Psychol       Date:  2022-04-01

5.  Blogging as a viable research methodology for young people with arthritis: a qualitative study.

Authors:  Julie Prescott; Nicola J Gray; Felicity J Smith; Janet E McDonagh
Journal:  J Med Internet Res       Date:  2015-03-05       Impact factor: 5.428

6.  "You get to know the people and whether they're talking sense or not": Negotiating trust on health-related forums.

Authors:  Ellen Brady; Julia Segar; Caroline Sanders
Journal:  Soc Sci Med       Date:  2016-06-18       Impact factor: 4.634

7.  Findings and Ethical Considerations From a Thematic Analysis of Threads Within Tinnitus Online Support Groups.

Authors:  Eve Ainscough; Sandra N Smith; Kate Greenwell; Derek J Hoare
Journal:  Am J Audiol       Date:  2018-11-19       Impact factor: 1.493

8.  How do online patient support communities affect the experience of inflammatory bowel disease? An online survey.

Authors:  Neil S Coulson
Journal:  JRSM Short Rep       Date:  2013-07-01

9.  A qualitative investigation of the impact of peer to peer online support for women living with polycystic ovary syndrome.

Authors:  Sarah Holbrey; Neil S Coulson
Journal:  BMC Womens Health       Date:  2013-12-17       Impact factor: 2.809

10.  Peer Communication in Online Mental Health Forums for Young People: Directional and Nondirectional Support.

Authors:  Julie Prescott; Terry Hanley; Katalin Ujhelyi
Journal:  JMIR Ment Health       Date:  2017-08-02
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