Literature DB >> 17279027

Do characteristics of HIPAA consent forms affect the response rate?

Dragana Bolcic-Jankovic1, Brian R Clarridge, Floyd J Fowler, Joel S Weissman.   

Abstract

OBJECTIVE: Under the The Health Insurance Portability and Accountability Act Privacy Rule, researchers are required to obtain written authorization from patients to gain access to protected health information. The purpose of this research was to examine how the characteristics of authorization forms used by hospitals affect the likelihood of consent.
METHOD: This work reports on a recent telephone survey (administered January to August 2004) of previously hospitalized patients from 16 Massachusetts hospitals. Respondents were asked to provide authorization for review of their medical records. Those respondents who agreed over the phone to be mailed authorization forms were sent a copy of their hospital's form and were asked to sign and return it. Measured characteristics of the forms included number of pages, number of fields, distinctness of institution's name, whether a witness was required, and requirement of Social Security Number (SSN).
RESULTS: We received 1021 signed forms (50.3% of all sent forms). The likelihood of return was affected by the requirement of the SSN, the clarity of the hospital name, and providing an extra copy for respondents' records. In logistic regression analysis, besides age and gender, only the SSN and clarity of the hospital name identification were significant.
CONCLUSION: Forms should be clear about the institution from which they come, easy to understand, and should not ask for SSN or other highly sensitive information unrelated to health care.

Entities:  

Mesh:

Year:  2007        PMID: 17279027     DOI: 10.1097/01.mlr.0000241062.79855.35

Source DB:  PubMed          Journal:  Med Care        ISSN: 0025-7079            Impact factor:   2.983


  5 in total

1.  Randomized trial showed that an "embedded" survey strategy optimized authorization rates compared with two "after survey" strategies in veterans with PTSD.

Authors:  Maureen Murdoch; Diane M Pietila; Melissa R Partin
Journal:  J Clin Epidemiol       Date:  2010-03-21       Impact factor: 6.437

2.  Who doesn't authorize the linking of survey and administrative health data? A general population-based investigation.

Authors:  Timothy J Beebe; Jeanette Y Ziegenfuss; Sarah M Jenkins; Lindsey R Haas; Michael E Davern
Journal:  Ann Epidemiol       Date:  2011-04-16       Impact factor: 3.797

3.  Health Insurance Portability and Accountability Act (HIPAA) authorization and survey nonresponse bias.

Authors:  Timothy J Beebe; Jeanette Y Ziegenfuss; Jennifer L St Sauver; Sarah M Jenkins; Lindsey Haas; Michael E Davern; Nicholas J Talley
Journal:  Med Care       Date:  2011-04       Impact factor: 2.983

4.  Crowdsourcing Public Opinion for Sharing Medical Records for the Advancement of Science.

Authors:  Chunhua Weng; Tianyong Hao; Carol Friedman; John Hurdle
Journal:  Stud Health Technol Inform       Date:  2019-08-21

Review 5.  "Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.

Authors:  Elizabeth M Hill; Emma L Turner; Richard M Martin; Jenny L Donovan
Journal:  BMC Med Res Methodol       Date:  2013-06-04       Impact factor: 4.615

  5 in total

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